Ethics in public health research: protecting human subjects: the role of community advisory boards

American Journal of Public Health
Sandra Crouse Quinn

Abstract

Increasingly, researchers grapple with meaningful efforts to involve communities in research, recognizing that communities are distinct from individuals. We also struggle to ensure that individual participants in research are fully protected. Community advisory boards (CABs) offer an opportunity to adopt a relationships paradigm that enables researchers to anticipate and address the context in which communities understand risks and benefits, and individuals give consent. CABs provide a mechanism for community consultation that contributes to protecting communities and fostering meaningful research. Furthermore, CABs can help us to re-create informed consent as a process. It is critical that we conduct research to understand the role of CABs in the informed consent process.

Associated Clinical Trials

References

Jun 5, 1998·Annual Review of Public Health·B A IsraelA B Becker
Oct 8, 1999·Cambridge Quarterly of Healthcare Ethics : CQ : the International Journal of Healthcare Ethics Committees·C Weijer
Sep 1, 2000·Public Health Reports·A KonéJ W Krieger
Sep 2, 2000·Science·C Weijer, E J Emanuel
Nov 7, 2000·The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics·R R Sharp, M W Foster
Dec 1, 2001·American Journal of Public Health·R P StraussG Millett
Jun 1, 2002·Health Education & Behavior : the Official Publication of the Society for Public Health Education·Sandro GaleaDavid Vlahov
Jun 1, 2002·Health Education & Behavior : the Official Publication of the Society for Public Health Education·Stephanie H FactorDavid Vlahov

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Citations

Oct 5, 2019·JMIR Research Protocols·Andrea L WirtzUNKNOWN American Cohort To Study HIV Acquisition Among Transgender Women (LITE)
Jun 29, 2005·American Journal of Public Health·Neal Dickert, Jeremy Sugarman
Jan 19, 2010·Research in Gerontological Nursing·Jennifer Hagerty LinglerAnn Kolanowski
Feb 5, 2011·The Gerontologist·R Turner GoinsSpero M Manson
Sep 21, 2011·Journal of Empirical Research on Human Research Ethics : JERHRE·Christian M SimonJamie L 'heureux
Sep 17, 2014·Journal of the International AIDS Society·Cynthia WoodsongPeggy Modikoe
Nov 9, 2016·Journal of Community Genetics·Kathleen A Culhane-PeraRobert J Straka
Aug 9, 2017·Nature Biotechnology·Carolyn P Neuhaus, Arthur L Caplan
Feb 20, 2018·The Hastings Center Report·Carolyn P Neuhaus
May 28, 2019·Journal of Medical Internet Research·Lester Darryl GenevièveBernice Simone Elger
May 4, 2006·American Journal of Public Health·Anthony J SilvestreDavid Ostrow
Apr 24, 2009·Journal of Empirical Research on Human Research Ethics : JERHRE·Liva H JacobyJames Watt
Sep 25, 2008·Journal of Acquired Immune Deficiency Syndromes : JAIDS·UNKNOWN NIMH Multisite HIV/STD Prevention Trial for African American Couples Group
Feb 5, 2010·Research in Gerontological Nursing·K Susan Sifford, Ashok Bharucha
Jun 2, 2009·Journal of Empirical Research on Human Research Ethics : JERHRE·Caitlin KennedyMark Farfel
Oct 13, 2010·Public Health Genomics·A J GoldenbergR R Sharp
Apr 24, 2009·Journal of Empirical Research on Human Research Ethics : JERHRE·Linda SilkaTrinidad Tellez
Jun 5, 2010·Journal of Community Practice·Anthony J SilvestreCharles R Rinaldo
Dec 18, 2010·American Journal of Public Health·Nancy ShoreSarena D Seifer
Apr 1, 2008·Clinical Trials : Journal of the Society for Clinical Trials·Stephen F MorinT Anne Richards
Jul 2, 2015·BMC Medical Ethics·Kathleen M MacQueenUNKNOWN Ethics Working Group of the HIV Prevention Trials Network
Oct 31, 2019·International Journal of Environmental Research and Public Health·Chandrika ManjunathLaPrincess C Brewer
Jun 23, 2009·American Journal of Public Health·Moriah McSharry McGrathMindy Thompson Fullilove
Jun 18, 2011·Journal of Empirical Research on Human Research Ethics : JERHRE·Nancy ShoreSarena D Seifer
Oct 31, 2013·Journal of Empirical Research on Human Research Ethics : JERHRE·UNKNOWN Participants in the Community Engagement and Consent Workshop , Kilifi, Kenya , March 2011
Nov 8, 2013·Current Cardiovascular Risk Reports·Michael K D AmponsahJared W Magnani
May 9, 2012·Journal of Empirical Research on Human Research Ethics : JERHRE·Emily E AndersonLainie Friedman Ross
Aug 25, 2016·Journal of Empirical Research on Human Research Ethics : JERHRE·Carlton Lawrence, Kearsley Stewart
Mar 25, 2019·Wellcome Open Research·Alun DaviesCaroline Jones
May 24, 2019·Health Education Research·Yamilï MolinaPhoenix A Matthews
Apr 24, 2009·Journal of Empirical Research on Human Research Ethics : JERHRE·Bethany Griffin DeedsUNKNOWN Adolescent Trials Network for HIV/AIDS Interventions
Jun 1, 2010·International Health·Phaik Yeong CheahFrançois Nosten

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