Ethnicity and participation in cancer self-help groups

Psycho-oncology
Mark AvisCaroline Bell

Abstract

Investigations of the benefits of membership of a cancer self-help group have suggested that it leads to improved sense of support, increased ability to deal with life-events, and decreased anxiety, confusion, depression and helplessness. However, some evidence suggests that people from black and ethnic groups are less likely to join a cancer self-help group. The main aims of the reported study were: to explore possible reasons why people from some ethnic groups have not participated in self-help to the same extent as the rest of the community; and to identify ways in which participation of people from ethnic groups can be increased. A qualitative interview-based study of 68 people active in self-help was carried out as a partnership between an academic institution and a community organisation. A thematic analysis of the interview transcripts identified three main aspects of the value of being a member of a self-help group, regardless of interviewees' self-identified ethnicity: forming a sense of togetherness, learning from one other, and developing mutuality. We identify a number of reasons that discourage or encourage people from black and ethnic groups to join cancer self-help groups. We discuss some limits, identified by in...Continue Reading

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Citations

Apr 29, 2010·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Clare StevinsonZiv Amir
Aug 29, 2013·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Jennifer LengFrancesca Gany
Jul 14, 2012·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Maureen P DaveyNancy Hodgson
Jul 14, 2010·Journal of Psychosocial Oncology·Kirsten BellJohn Christopherson
Jul 13, 2013·Journal of Psychosocial Oncology·Erin E KentRachel Ballard-Barbash
Jun 20, 2013·Journal of Adolescent and Young Adult Oncology·Erin E KentLinda C Harlan
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Jun 7, 2015·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Maureen P DaveyFaith M Young
Jan 17, 2014·Journal of Psychosocial Oncology·Kathleen D MorseLisa M Rosen
Mar 31, 2010·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Claire L Treadgold, Aura Kuperberg
Dec 2, 2009·Qualitative Health Research·Lisa M Baumgartner, Keegan N David
Jul 17, 2020·Disability and Rehabilitation·Bodil J LandstadElizabeth Kendall
Mar 3, 2020·Work : a Journal of Prevention, Assessment, and Rehabilitation·Mikael NordenmarkMarianne Hedlund

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