Evaluating a young-onset dementia service from two sides of the coin: staff and service user perspectives

BMC Health Services Research
Clarissa GiebelAnna Pearson

Abstract

People with young-onset dementia (YOD) can often struggle getting the right treatment. This is because of their frequently different characteristics and needs compared to people with late-onset dementia. The aim of this project was to assess a memory service for its adaptation to the needs and wishes of people with YOD and their carers. This project evaluated a memory service in the North West of England by performing two focus groups with clinical staff and six semi-structured interviews with people with YOD and carers. The focus groups took place on site and lasted one hour each. People with YOD and their carers were identified via the memory clinics caseload and via the local Alzheimer's Society charity organisation. Both focus groups and interviews were audio-recorded and transcribed, and data were analysed using thematic analysis. The public (a person living with YOD and his carer) were involved from the design stages of the project through to the analysis and dissemination. Eleven members of staff with different clinical backgrounds participated in the focus groups and six interviews were held with people with YOD and their carers. Both indicated that whilst the diagnostic process is relatively well conducted at the servi...Continue Reading

References

Jan 12, 2010·Journal of Alzheimer's Disease : JAD·Esther L G E KoedamYolande A L Pijnenburg
Oct 20, 2010·International Journal of Geriatric Psychiatry·Deliane van VlietFrans R J Verhey
Dec 7, 2010·American Journal of Alzheimer's Disease and Other Dementias·Christian BakkerRaymond T C M Koopmans
Jan 8, 2013·The American Journal of Geriatric Psychiatry : Official Journal of the American Association for Geriatric Psychiatry·Christian BakkerRaymond T C M Koopmans
Jul 24, 2013·Clinical Practice and Epidemiology in Mental Health : CP & EMH·Renata Teles VieiraMauro Giovanni Carta
Jan 16, 2014·International Psychogeriatrics·Maria Lage BarcaAud Johannessen
May 17, 2014·Aging & Mental Health·Clarissa M GiebelDavid Challis
Sep 18, 2014·Psychological Medicine·L L SmitsW M van der Flier
Jan 1, 2015·BMC Nursing·Francine DucharmeFlorence Pasquier
Oct 30, 2016·International Journal of Geriatric Psychiatry·Joany K MillenaarMarjolein E de Vugt
Jun 18, 2017·Aging & Mental Health·Andrea MayrhoferClaire Goodman
Aug 28, 2017·Patient Education and Counseling·Bridget JonesUNKNOWN RHAPSODY Study Group
Aug 14, 2018·International Psychogeriatrics·Clarissa M GiebelCaroline Sutcliffe

❮ Previous
Next ❯

Citations

Jun 3, 2020·International Psychogeriatrics·Clarissa GiebelAravind Komuravelli
Feb 2, 2021·Journal of Alzheimer's Disease : JAD·Julia HartmannJanine Diehl-Schmid
Jan 21, 2021·International Journal of Environmental Research and Public Health·Clarissa GiebelMark Gabbay
Feb 25, 2021·Australasian Psychiatry : Bulletin of Royal Australian and New Zealand College of Psychiatrists·Samantha M LoiDennis Velakoulis
May 6, 2021·Health & Social Care in the Community·Vasileios StamouJan R Oyebode
Jun 16, 2021·International Psychogeriatrics·Clarissa Giebel

❮ Previous
Next ❯

Software Mentioned

LLAMS

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.