Evaluation of early musculoskeletal disease in patients with haemophilia: results from an expert consensus

Blood Coagulation & Fibrinolysis : an International Journal in Haemostasis and Thrombosis
Axel SeuserLily Heijnen

Abstract

: Early joint damage in patients with haemarthrosis often escapes diagnosis because of insufficient investigation of biomechanical changes. Arthropathy in haemophilia requires complex assessment with several tools. Considering the increased emphasis on an integrated approach to musculoskeletal (MSK) outcomes, re-evaluation of MSK assessment to address individual patient needs is warranted. To advise on the optimal use of current assessment tools and strategies for tailored MSK evaluation in patients with haemophilia. A panel of experts in haemophilic arthropathy evaluated internationally recognized assessment tools through published literature and personal expertise. Each tool was considered, scored and ranked for their utility in the clinical assessment of MSK damage. Subsequently, a patient evaluation table detailing advice on type and frequency of assessments for different patient populations was constructed. To obtain a complete MSK assessment, multiple tools must be used to ensure each criterion is evaluated. For patients with haemophilia, clinical examination of the joint, disease-specific structure/function scores, and activity/participation scores including quality of life are important, and should be performed on a reg...Continue Reading

References

Jan 1, 1987·Journal of Chronic Diseases·G GuyattG Norman
Jul 2, 1999·Social Science & Medicine·G L Albrecht, P J Devlieger
Feb 5, 2000·Clinical Biomechanics·M R TorryJ R Steadman
May 3, 2000·Haemophilia : the Official Journal of the World Federation of Hemophilia·J A AznarJ M Tusell
Jun 9, 2001·The New England Journal of Medicine·P M Mannucci, E G Tuddenham
Sep 20, 2001·Journal of Orthopaedic Research : Official Publication of the Orthopaedic Research Society·G M ThorntonC B Frank
May 16, 2002·Haemophilia : the Official Journal of the World Federation of Hemophilia·K Beeton
Nov 2, 2002·Haemophilia : the Official Journal of the World Federation of Hemophilia·T WallnyC N Kraft
Jan 22, 2005·Haemophilia : the Official Journal of the World Federation of Hemophilia·K FischerH M Berg
Oct 21, 2005·Haemophilia : the Official Journal of the World Federation of Hemophilia·P M PoonnooseA Srivastava
Jan 18, 2006·Haemophilia : the Official Journal of the World Federation of Hemophilia·F R van GenderenN L U van Meeteren
May 11, 2006·Haemophilia : the Official Journal of the World Federation of Hemophilia·G Roosendaal, F P Lafeber
Aug 22, 2006·Haemophilia : the Official Journal of the World Federation of Hemophilia·P HilliardB M Feldman
Jan 11, 2007·Haemophilia : the Official Journal of the World Federation of Hemophilia·M R HackerM J Manco-Johnson
Sep 22, 2007·Haemophilia : the Official Journal of the World Federation of Hemophilia·Axel SeuserKarin Kurnik
Aug 10, 2007·The New England Journal of Medicine·Marilyn J Manco-JohnsonBruce L Evatt
Oct 18, 2007·Haemophilia : the Official Journal of the World Federation of Hemophilia·A SeuserJ Oldenburg
Jan 15, 2009·Haemophilia : the Official Journal of the World Federation of Hemophilia·P Petrini, A Seuser
Jun 6, 2009·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Monika BullingerSylvia von Mackensen
Aug 8, 2009·Haemophilia : the Official Journal of the World Federation of Hemophilia·D StephensenM Winter
Nov 13, 2009·Haemophilia : the Official Journal of the World Federation of Hemophilia·W G GroenK Fischer
Jan 28, 2010·Haemophilia : the Official Journal of the World Federation of Hemophilia·G Di MinnoM N D Di Minno
Feb 18, 2011·Haemophilia : the Official Journal of the World Federation of Hemophilia·C HermansUNKNOWN European Haemophilia Therapy Standardisation Board
Mar 5, 2011·Haemophilia : the Official Journal of the World Federation of Hemophilia·S LobetC Detrembleur
Dec 17, 2011·Expert Opinion on Biological Therapy·Isabel AndiaNicola Maffulli
Jul 7, 2012·Haemophilia : the Official Journal of the World Federation of Hemophilia·B LundinUNKNOWN International Prophylaxis Study Group
Oct 9, 2012·Haemophilia : the Official Journal of the World Federation of Hemophilia·D CzepaT Hilberg
Mar 29, 2013·Haemophilia : the Official Journal of the World Federation of Hemophilia·C NegrierL Heijnen
Apr 9, 2013·Medical Hypotheses·J Hoffman, P Gabel
Jun 15, 2013·TheScientificWorldJournal·Sébastien LobetCedric Hermans
Aug 21, 2013·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Nancy L YoungVictor Blanchette
Oct 12, 2013·Haemophilia : the Official Journal of the World Federation of Hemophilia·C Sierra AisaD Rubio Félix
Oct 30, 2013·Haemophilia : the Official Journal of the World Federation of Hemophilia·D SluiterK Fischer
Nov 21, 2013·Haemophilia : the Official Journal of the World Federation of Hemophilia·D StephensenO M Scott
Dec 18, 2013·Haemophilia : the Official Journal of the World Federation of Hemophilia·J SunM C Poon
Apr 15, 2014·Thrombosis Research·Axel SeuserCornelia Wermes
Jul 8, 2014·Journal of Pediatric Hematology/oncology·Yesim OymakRaziye C Vergin
Nov 8, 2014·Journal of Blood Medicine·Sébastien LobetCatherine Lambert
Dec 4, 2014·Haemophilia : the Official Journal of the World Federation of Hemophilia·J OldenburgUNKNOWN Cross-sectional MRI study investigators
Apr 10, 2015·Thrombosis and Haemostasis·Annarita TagliaferriUNKNOWN POTTER Study Group
Apr 30, 2015·Seminars in Thrombosis and Hemostasis·Pradeep M Poonnoose, Janjaap van der Net
Jul 17, 2015·Haemophilia : the Official Journal of the World Federation of Hemophilia·A NijdamK Fischer
Sep 1, 2015·Haemophilia : the Official Journal of the World Federation of Hemophilia·C AltisentR Parra

❮ Previous
Next ❯

Citations

Aug 21, 2020·Blood Coagulation & Fibrinolysis : an International Journal in Haemostasis and Thrombosis·Hortensia De la Corte-RodriguezVíctor Jimenez-Yuste
Dec 6, 2020·Blood Reviews·E D P van BergenF P J G Lafeber
Feb 24, 2021·Haemophilia : the Official Journal of the World Federation of Hemophilia·Víctor Jiménez-YusteHae Kyung Kim
Mar 5, 2021·Wiener klinische Wochenschrift·Waltraud StromerWerner Streif
May 21, 2021·Haemophilia : the Official Journal of the World Federation of Hemophilia·Denise EtzweilerErika O Huber

❮ Previous
Next ❯

Methods Mentioned

BETA
imaging techniques
X-ray
imaging technique

Software Mentioned

HAEMO
QoL
PedHAL

Related Concepts

Related Feeds

Blood Clotting Disorders

Thrombophilia includes conditions with increased tendency for excessive blood clotting. Blood clotting occurs when the body has insufficient amounts of specialized proteins that make blood clot and stop bleeding. Here is the latest research on blood clotting disorders.

© 2022 Meta ULC. All rights reserved