Evaluation of the health-related quality of life in Turkish cystic fibrosis patients.

Pediatrics International : Official Journal of the Japan Pediatric Society
Gulzar AlishbayliHaluk Cokugras

Abstract

Prolongation of life expectancy in cystic fibrosis (CF) to the fourth decade makes health-related quality of life (HRQOL) an important issue in this population. This study aims to evaluate the effects of clinical and socio-demographic characteristics of patients on different aspects of HRQOL in a pediatric CF population. We also intend to assess some measures of reliability and validity of the Turkish CF Questionnaire-Revised (CFQ-R) forms. Fifty-four CF patients and 46 parents / caregivers filled the appropriate CFQ-R forms. Disease severity was evaluated via modified Shwachman-Kulczycki (SK) scores, and additional clinical information was obtained from patient records. Forty-three percent (n = 23) of patients were female, the mean age of patients being 13.3 ± 3.96 years. Self- and proxy-reported points showed a strong correlation (Spearman's rho > 0.6) on more observable domains of HRQOL (e.g. physical functioning). No significant difference was found between sexes on any HRQOL domain. When compared between age groups, treatment burden appeared to worsen with age, while social functioning improved. All three forms of the CFQ-R Turkish version showed acceptable internal consistency reliability and convergence with disease seve...Continue Reading

References

Jun 5, 2001·Pediatrics·H Truby, A S Paxton
Nov 20, 2002·American Journal of Medical Genetics·Mehmet Okyay KilinçAslihan Tolun
Nov 1, 1964·The Journal of Pediatrics·C F DOERSHUKS SPECTOR
Nov 7, 2003·Journal of Pediatric Psychology·Avani C Modi, Alexandra L Quittner
Jun 12, 2008·Jornal brasileiro de pneumologia : publicaça̋o oficial da Sociedade Brasileira de Pneumologia e Tisilogia·Ivanice Duarte FreireManuel Angelo de Araújo
Dec 4, 2009·Health and Quality of Life Outcomes·Anne SchmidtDoris Staab
Jan 5, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Milena D Anatchkova, Jakob B Bjorner
May 4, 2011·Jornal brasileiro de pneumologia : publicaça̋o oficial da Sociedade Brasileira de Pneumologia e Tisilogia·Milena Antonelli CohenAndré Moreno Morcillo
Oct 14, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Alexandra L QuittnerMichael W Konstan
Apr 12, 2012·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Hasan YukselAlexandra L Quittner

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