Evaluation of the quality of life in pediatrics: how to collect the point of view of children

Archives de pédiatrie : organe officiel de la Sociéte française de pédiatrie
S ManificatJ Nicolas

Abstract

There are very few available child quality of life questionnaires. We describe here a French questionnaire (AUQUEI) which consists of a structured format scale (26 items). The first part of the questionnaire studies child satisfaction. Response levels are measured by checking faces expressing different emotional states. The validation is satisfactory, and the questionnaire is able to differentiate healthy children from sick children (HIV positive). A second part of the questionnaire focuses on the child's own quality of life, and is based upon open-ended questions. This second approach allows to broaden the structured format scale and improves the understanding of the child's quality of life. It constitutes a necessary complement to the first part as it avoids using mechanically adult-specific concepts for children. We also found it to be sensitive enough to distinguish sick children from healthy ones. The AUQUEI questionnaire with its two complementary parts appears to be a potentially valuable tool to better understand the experience of sick children, in the various aspects of their life, and to follow their evolution.

Citations

Mar 16, 2007·Developmental Medicine and Child Neurology·Michael H LivingstonRobert J Palisano
Sep 29, 2011·Child Neuropsychology : a Journal on Normal and Abnormal Development in Childhood and Adolescence·Carmen SoriaGeorges Dellatolas
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