Examining the Roles and Experiences of Fathers of Children With Chronic Kidney Disease

Global Qualitative Nursing Research
David B Nicholas

Abstract

This study examined roles and experiences of fathers of children with chronic kidney disease (CKD). Based on interpretive description, semistructured interviews were conducted with 22 fathers of children receiving a range of treatments (transplant, peritoneal dialysis, hemodialysis, and CKD not requiring renal replacement therapy). Fathers described various experiences and means of adjusting to shifts associated with pediatric CKD. These included loss of personal control, a sense of personal isolation, and a stance of remaining strong amidst personal suffering. Nuanced differences according to modality of CKD care were identified. Fathers engaged in strategies that fostered coping, such as remaining positive and taking charge. They conveyed deep love for their child, and demonstrated ingenuity and persistence in care. Few resources of support were accessed by fathers. Study recommendations invite holistic approaches to health care, with improved resources for families-including fathers-in addressing the needs of this population.

References

May 8, 2008·International Journal of Nursing Practice·Erica S de PaulaSemiramis M M Rocha
Apr 11, 2009·Social Work in Health Care·David B NicholasEnid K Selkirk
Nov 17, 2009·Clinical Child Psychology and Psychiatry·Anne F Gannoni, Rosalyn H Shute
Jun 1, 2011·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Veronica SwallowHeather Lambert
Jul 12, 2013·Journal of Pediatric Psychology·Melissa K Cousino, Rebecca A Hazen
Jun 26, 2014·Qualitative Health Research·Ted McNeillEnid Selkirk

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Citations

Aug 28, 2019·Journal of Renal Care·Hanne AgerskovBirthe D Pedersen
Oct 16, 2021·Maternal and Child Health Journal·Allyson LynchRenee Turchi

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Software Mentioned

Vivo

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