Experiences and concerns of family caregivers providing support to people with dementia: a cross-cultural perspective

Dementia
Susan L IveyRebecca G Logsdon

Abstract

We examined experiences and concerns among caregivers of community-dwelling people with dementia from two ethnic groups. We conducted a thematic analysis of responses to the question, 'What is your life like as a caregiver?' in nine focus groups (n = 75) with Filipino and non-Hispanic White caregivers. Constant comparison methods identified themes by ethnicity. Experiences and concerns expressed across groups were related to care recipient symptoms commonly associated with dementia, including severe memory loss and behavioral changes. Participants in both ethnic groups described strategies that help them cope, such as receiving help from family and friends, receiving respite support, and participating in support groups. Filipino caregivers more often emphasized positive aspects of caregiving, whereas Whites often expressed that others do not understand the daily experiences of caregiving. Filipinos more commonly described caregivers as a 'good person' or 'saint' and emphasized that caregiving made them stronger.

References

Jan 27, 2000·Culture, Medicine and Psychiatry·W L HintonS Levkoff
Mar 28, 2002·Journal of Gerontological Nursing·S NarayanS Corcoran-Perry
Jul 13, 2002·Journal of Transcultural Nursing : Official Journal of the Transcultural Nursing Society·Patricia S JonesAfaf I Meleis
Nov 5, 2003·Western Journal of Nursing Research·Patricia S JonesAfaf I Meleis
Nov 14, 2003·The New England Journal of Medicine·Richard SchulzUNKNOWN Resources for Enhancing Alzheimer's Caregiver Health Investigators
Feb 10, 2004·Holistic Nursing Practice·Olimpia Paun
Jul 14, 2004·Alzheimer Disease and Associated Disorders·Frank M TortiKevin A Schulman
Aug 6, 2004·The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences·Lucinda Lee RoffJ Michael Hardin
May 2, 2007·Policy, Politics & Nursing Practice·Barbara L Brush, Julie Sochalski
Apr 14, 2009·The Gerontologist·Carrie L GrahamLinda Neuhauser
May 12, 2009·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·UNKNOWN Alzheimer's Association

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Citations

Jan 29, 2013·International Journal of Aging & Human Development·Sarah B LaditkaRenée L Beard
Sep 24, 2016·Aging & Mental Health·Kyung Hee YoonUNKNOWN CARE (Caregivers of Alzheimer's Disease Research) Investigators
Jan 18, 2017·International Journal of Aging & Human Development·Calandra SpeirsCandace Konnert
Oct 9, 2018·British Journal of Health Psychology·Georgie RaymentGemma Wilson
Aug 8, 2019·Clinical Nursing Research·Susan M McLennonJoel G Anderson
Apr 14, 2018·Dementia·Saloua Berdai Chaouni, Liesbeth De Donder
Mar 14, 2021·Journal of Aging Studies·Saloua Berdai ChaouniLiesbeth De Donder

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