Experiences of employment among young people with juvenile idiopathic arthritis: a qualitative study

Disability and Rehabilitation
Helen HansonHelen E Foster

Abstract

This study explored expectations and experiences of employment among young people with juvenile idiopathic arthritis and the role of health professionals in promoting positive employment outcomes. Semistructured interviews (n = 13) and three focus groups (n = 9, n = 4, n = 3) were conducted with young people (16-25 y) and adults (26-31 y) with juvenile idiopathic arthritis and semistructured interviews (n = 9) were conducted with health professionals. Transcripts were analyzed thematically. Young people with juvenile idiopathic arthritis have concerns about employers' attitudes toward employees with long-term health conditions and lack knowledge of antidiscrimination legislation. Young people not in education, employment or training identify arthritis as a key barrier. Challenges associated with arthritis (e.g., pain, psychological distress) may not be visible to employers. Decisions about disclosing arthritis are challenging and cause anxiety. Young people associate good disease management and access to flexible and convenient care with their capacity to succeed in employment. Psychosocial and vocational interventions have benefited some young people but are not routinely available. Low expectations of employers may affect you...Continue Reading

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Citations

Mar 10, 2019·International Journal of Adolescent Medicine and Health·Albert FarreJanet E McDonagh
Aug 28, 2020·Occupational and Environmental Medicine·Danielle BerkovicIlana Ackerman

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