Experiences of living with fetal alcohol spectrum disorders: a systematic review and synthesis of qualitative data

Developmental Medicine and Child Neurology
Helena DomeijGert Helgesson

Abstract

To identify and assess available evidence from qualitative studies exploring experiences of individuals living with fetal alcohol spectrum disorders (FASD) or those living with a child with FASD, as well as experiences of interventions aimed at supporting individuals with FASD and their families. A systematic literature search was conducted in six electronic databases: PubMed, Embase, Cochrane Library, CINAHL, PsycINFO, and Scopus. Included studies were analysed using manifest content analysis. Methodological limitations and confidence in the evidence were assessed using a modified version of the Critical Appraisal Skills Programme and the Grading of Recommendations, Assessment, Development and Evaluation-Confidence in the Evidence from Reviews of Qualitative Research approach respectively. Findings from 18 studies show that individuals with FASD experience a variation of disabilities, ranging from somatic problems, high pain tolerance, destructive behaviour, hyperactivity, and aggressiveness, to social problems with friendship, school attendance, and maintenance of steady employment. Most studies reported parents' experiences with FASD; parenting was viewed as a lifelong engagement and that the whole family is isolated and bur...Continue Reading

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Citations

Mar 24, 2018·Developmental Medicine and Child Neurology·Ilona Autti-Rämö
Dec 13, 2019·Acta Paediatrica·Victoria PueyoBelen Masia
Jul 30, 2019·Research in Developmental Disabilities·Jessica DoakAndrew Wood
Mar 23, 2021·International Journal of Technology Assessment in Health Care·Sophie Staniszewska, Sophie Söderholm Werkö
Oct 10, 2021·Behavioral Sciences & the Law·Natalie Novick Brown, Stephen Greenspan
Nov 2, 2021·Obstetrical & Gynecological Survey·Ioannis TsakiridisMichail Chourdakis
Oct 31, 2021·Alcoholism, Clinical and Experimental Research·Katherine FlanniganJacqueline Pei
Jan 4, 2022·Child Neuropsychology : a Journal on Normal and Abnormal Development in Childhood and Adolescence·Julia T MattsonSara T Kover

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