Experiences of persons with early-onset dementia in everyday life: a qualitative study

Dementia
Aud Johannessen, Anders Möller

Abstract

The small number of existing studies confirms that people with early-onset dementia (EOD) need special assistance from the beginning and as the disease progresses. There is a need to develop services to respond to the specific needs of persons with EOD. To find out how people experience living with early-onset dementia, and to assess the implications for practice and the development of further services. Grounded theory, a qualitative method, with interviews of 20 informants (aged 54-67 years; 12 of them men) during 2010-2011. One category, the process toward a dementia diagnosis, covered two subcategories; describing changes and being diagnosed. Another category fighting for dignity describes how the informants try to maintain their quality of life, covering two subcategories; intrapsychic challenges and social challenges. Health services should give persons with EOD the ability to maintain contact with society and their voices should not be overlooked.

References

Jul 11, 1998·International Journal of Geriatric Psychiatry·G LuscombeS Freeth
Aug 23, 2003·Journal of Neurology, Neurosurgery, and Psychiatry·R J HarveyM N Rossor
May 9, 2006·Dementia and Geriatric Cognitive Disorders·Marjolein E de VugtFrans R J Verhey
Sep 22, 2006·International Journal of Geriatric Psychiatry·Ingun UlsteinKnut Engedal
Apr 18, 2008·International Journal of Impotence Research·S H FrancisJ D Corbin
Aug 6, 2008·Dementia and Geriatric Cognitive Disorders·Esther L G E KoedamWiesje M van der Flier
May 28, 2009·International Psychogeriatrics·Perla WernerAmos D Korczyn
Jun 2, 2009·Aging & Mental Health·Phyllis Braudy Harris, John Keady
Feb 18, 2010·The Journal of Neuropsychiatry and Clinical Neurosciences·Asmus VogelGunhild Waldemar
Aug 6, 2010·Aging & Mental Health·Emma SvanbergAimee Spector
Oct 20, 2010·International Journal of Geriatric Psychiatry·Deliane van VlietFrans R J Verhey
Dec 7, 2010·American Journal of Alzheimer's Disease and Other Dementias·Christian BakkerRaymond T C M Koopmans

❮ Previous
Next ❯

Citations

Feb 9, 2016·Scandinavian Journal of Occupational Therapy·Maria M JohanssonEwa Wressle
May 11, 2017·Australasian Psychiatry : Bulletin of Royal Australian and New Zealand College of Psychiatrists·Sally Rimkeit, Jacqueline McIntosh
Feb 19, 2016·American Journal of Alzheimer's Disease and Other Dementias·Janet SansoniAnita Westera
May 17, 2018·Qualitative Health Research·Charlotte L ClarkeToby Williamson
Jan 27, 2018·Neurodegenerative Disease Management·John H Spreadbury, Christopher M Kipps
Jul 6, 2018·International Journal of Qualitative Studies on Health and Well-being·Aud JohannessenKirsten Thorsen
Apr 18, 2015·American Journal of Speech-language Pathology·Mirza J Lugo-NerisRonald B Gillam
Feb 3, 2018·BMC Geriatrics·Linn Hege FørsundSiren Eriksen
Apr 14, 2016·International Psychogeriatrics·Angela RichardsonNan Greenwood
Nov 14, 2015·International Psychogeriatrics·Karen HutchinsonSusan Kurrle
Nov 2, 2019·BMC Geriatrics·Guro Hanevold BjørkløfSiren Eriksen
Mar 1, 2020·International Journal of Qualitative Studies on Health and Well-being·Laila Mohrsen BustedRegner Birkelund
Jul 10, 2020·Journal of Geriatric Psychiatry and Neurology·Divyansh DixitChristopher Kipps
Mar 15, 2019·Alzheimer Disease and Associated Disorders·Maria A T BaptistaMarcia C N Dourado
Sep 19, 2019·BJPsych Open·Mary O'MalleyJanet Carter
Oct 28, 2019·Aging & Mental Health·Mary O'MalleyJacqueline Parkes
May 6, 2021·Health & Social Care in the Community·Vasileios StamouJan R Oyebode

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Stroke; a Journal of Cerebral Circulation
Chiaki IkejimaTakashi Asada
American Journal of Alzheimer's Disease and Other Dementias
Sarah E FairjonesPeter K Panegyres
American Journal of Alzheimer's Disease and Other Dementias
Elizabeth ArmariPeter K Panegyres
Alzheimer Disease and Associated Disorders
Candice PicardOlivier Godefroy
American Journal of Alzheimer's Disease and Other Dementias
Christian BakkerRaymond T C M Koopmans
© 2021 Meta ULC. All rights reserved