Experiences of user involvement in mental health settings: User motivations and benefits

Journal of Psychiatric and Mental Health Nursing
Sophie G B NeechAlison E Tweed

Abstract

WHAT IS KNOWN ON THE SUBJECT?: User involvement, when people who have accessed services become actively involved in aspects of mental health care, can sometimes be "tokenistic" and not well thought through. Users are often involved in their own care, and asked for feedback, but are less likely to be meaningfully involved in developing services and training staff. WHAT THIS PAPER ADDS TO EXISTING KNOWLEDGE?: To implement meaningful involvement, it is important to know why some users choose to devote time to such activities. User representatives in this study, involved in a UK mental health service, wanted to help people in a similar position and give something back to those that helped them. As people started involvement activities, such as interviewing staff, they gained confidence and felt part of something that was making a difference. After being supported by staff to explore opportunities, representatives become more independent and some moved to different, sometimes salaried, roles. Some representatives did not feel valued or supported. Staff often controlled opportunities, and many users missed out on being involved. WHAT ARE THE IMPLICATIONS FOR PRACTICE?: Staff need to understand and receive training on involvement. The...Continue Reading

References

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Jan 8, 2013·Community Mental Health Journal·Else Tambuyzer, Chantal Van Audenhove

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Citations

Jun 11, 2020·Research Involvement and Engagement·Aukelien ScheffelaarKatrien Luijkx
Apr 4, 2021·International Journal of Environmental Research and Public Health·Marta MarsilioChiara Guglielmetti
Nov 27, 2021·International Journal of Qualitative Studies on Health and Well-being·Lena Wiklund Gustin

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