PMID: 2484648Jan 1, 1987Paper

Experimental chemotherapy in children with cancer--a parent's view

Pediatric Hematology and Oncology
W A KampsG B Humphrey

Abstract

Parental attitude and the parents' perceptions of a child's responsibilities were measured by mailing a questionnaire to 156 parents of cured children of the Pediatric Oncology Center, University of Groningen. Simplistically, the questionnaire concerned parental judgment on (1) the role of the child in decisions about experimental therapy, (2) what information should be related to the child and by whom, (3) parental attitudes toward experimental therapy, and (4) the parents' opinions about ethical aspects of proposing experimental therapy. A high response rate (87.8%) was achieved. A majority of the respondents would allow a child take responsibility in deciding about experimental therapy. In their opinion the median age (16 years) at which a child should be allowed to give consent was higher than the median age (12 years) at which a child should merely be involved in the decision. Parents were more likely to overrule the child's decision if the child decided against experimental therapy than if the child chose the therapy (p less than 0.001). Parents found it more difficult to talk about death than about experimental therapy, and parents would be more willing to involve the physician in discussing experimental therapy than in ...Continue Reading

References

Apr 30, 1983·Lancet
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Sep 1, 1982·The Journal of Pediatrics·R NitschkeS Jay

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Citations

Oct 19, 2011·CMAJ : Canadian Medical Association Journal = Journal De L'Association Medicale Canadienne·Deborah TomlinsonLillian Sung
Sep 1, 1988·Journal of Child Psychology and Psychiatry, and Allied Disciplines·R Lansdown, A Goldman
Dec 24, 2011·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Deborah TomlinsonLillian Sung
Oct 12, 2004·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Ann Chang
Aug 7, 1991·American Journal of Health Promotion : AJHP·J B Igoe
Jan 16, 2018·Pediatric Blood & Cancer·Aurore SurunFrançois Doz
Mar 1, 1994·Transactions of the Royal Society of Tropical Medicine and Hygiene·R A NealS L Croft
Jan 1, 1991·Medical and Pediatric Oncology·C B Pratt
Feb 19, 2021·Pediatrics·Fyeza HasanLaura Wheaton

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