Exploration of Patient Characteristics and Quality of Life in Patients with Lipoedema Using a Survey

Dermatology and Therapy
Jeroen R M RomeijnHerm Martens

Abstract

Lipoedema is a chronic disorder in which excessive fat distribution occurs predominantly from the waist down, resulting in a disproportion between the lower extremities and upper torso. Lipoedema is often not recognized, while patients experience pain and easy bruising. As a long-term condition, lipoedema has a massive effect on patients' lives and mental health. The aim of this study is to explore patient characteristics, quality of life, physical complaints and comorbidities in patients with lipoedema. A survey was conducted by email amongst lipoedema patients, consisting of informed consent and multiple questionnaires. The questionnaires included general patient characteristics, physical complaints, comorbidities, RAND-36 and EQ-5D-3L. Participants who responded to a message on the Dutch Lipoedema Association website were recruited. All lipoedema patients experience physical complaints, with pain (88.3 %) and easy bruising (85.9 %) as primary complaints. The diagnosis was mostly made by a dermatologist after visiting a mean of 2.8 doctors. Furthermore, mean time from onset until diagnosis was 18 years. Quality of life (59.3) was significantly lower than the Dutch female average (74.9; p < 0.001). Additionally, patients with ...Continue Reading

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Citations

Dec 20, 2018·Dermatologic Therapy·Uwe Wollina
Apr 10, 2020·British Journal of Community Nursing·Ilka Paling, Lisa Macintyre
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May 30, 2021·Phlebology·Karen L HerbstEthan Larson

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