Exploring concerns of children with cancer.

Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer
Karen MoodyLaura Robbins

Abstract

Aggressive treatment protocols in pediatric oncology have major effects on the lives of children with cancer. The effects of lifestyle changes such as hospitalization and home schooling on quality of life have not been investigated. This study explores lifestyle effects of cancer therapy on the quality of life of children with cancer. The goals of this study were to identify important quality-of-life issues from the perspectives of children with cancer and to identify how they think their experience with cancer treatment could be improved. Pediatric oncology patients age 5-21 were interviewed individually. Sample questions included, "Ever since you got sick, what has bothered you the most?" and "How has having this illness affected your life?" Responses were analyzed using standard qualitative techniques. Thirty-one patients were interviewed in depth. Four major themes emerged including (1) loneliness and isolation: the loss of a normal childhood, (2) decreased pleasure from food, (3) physical discomfort and disability, and (4) emotional responses to cancer, specifically anger and fear. Their suggestions for improvement included better-tasting food, more comfortable hospital décor, and social activities with children their own ...Continue Reading

References

Jan 1, 1992·Health Psychology : Official Journal of the Division of Health Psychology, American Psychological Association·T G Burish, R A Jenkins
Apr 1, 1980·Journal of Child Psychology and Psychiatry, and Allied Disciplines·G P KoocherD J Foster
Jan 1, 1997·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·K EnskärA Kreuger
Feb 1, 1997·Cancer Nursing·K EnskärE Hamrin
Aug 12, 1998·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·V E KarianJ A Beal
Aug 12, 1998·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·M Hockenberry-EatonJ Taylor
Feb 19, 2000·International Journal of Cancer. Supplement = Journal International Du Cancer. Supplement·M SawyerM Rice
Nov 4, 2000·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·R Woodgate
Nov 4, 2000·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·R Woodgate
Mar 29, 2002·Psycho-oncology·Brad J Zebrack, Mark A Chesler

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Citations

Jul 10, 2010·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Jennifer CohenBelinda Goodenough
Jul 16, 2011·Cancer Nursing·Lois Van CleveKathleen Adlard
Jul 16, 2011·Cancer Nursing·Susan A Kestler, Geri LoBiondo-Wood
Mar 12, 2013·Journal of Medical Internet Research·Jennifer N StinsonMike Orr
Apr 19, 2013·Pediatric Blood & Cancer·Margareta af SandebergEva Johansson
Feb 15, 2011·Pediatric Blood & Cancer·Argerie TsimicalisUNKNOWN Pediatric Oncology Group of Ontario
Sep 10, 2014·Pediatrics International : Official Journal of the Japan Pediatric Society·Yuko TakeiShin-Ichi Suzuki
Jan 30, 2015·Japanese Journal of Clinical Oncology·Yoshinori ItoTatsuo Akechi
Jul 26, 2011·The Journal of Pediatrics·Jeannie S HuangLeona Kay Bartholomew
Jul 7, 2014·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Laura DarcySusanne Knutsson
Aug 26, 2016·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Samantha J AnthonyAnne F Klassen
Mar 1, 2012·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Lois Van CleveMarilyn Savedra
Dec 2, 2010·Revista latino-americana de enfermagem·Elizelaine de Chico CicognaRegina Aparecida Garcia de Lima
Sep 11, 2008·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Jennifer I Rheingans
Sep 11, 2008·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Jennifer I Rheingans
Aug 19, 2009·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Christina BaggottChristine Miaskowski
Jul 24, 2008·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Margareta af SandebergLena Wettergren
Mar 23, 2018·Journal of Adolescent and Young Adult Oncology·Samantha C SodergrenAnne-Sophie Darlington
Feb 3, 2016·The Cochrane Database of Systematic Reviews·Robert S PhillipsBarry Pizer
Jul 20, 2010·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Charlotte Angström-BrännströmVera Dahlqvist
Jul 20, 2010·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Amy J WalkerLillian Nail
Jun 28, 2018·Oncology Nursing Forum·Lindsay A JibbJennifer N Stinson
Sep 14, 2010·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Karen MoodyAlyson Moadel
Jul 10, 2019·Nutrition Research Reviews·S Beaulieu-GagnonV Marcil
Mar 3, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Samantha C SodergrenUNKNOWN EORTC Quality of Life Group
Jun 5, 2020·Physiotherapy Canada. Physiothérapie Canada·Paula A OspinaMargaret L McNeely
Aug 7, 2019·International Journal of Environmental Research and Public Health·Aleksandra KowalukIwona Malicka
Nov 14, 2019·Physiotherapy Canada. Physiothérapie Canada·Paula A Ospina, Margaret L McNeely
Oct 18, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Shannon HyslopLillian Sung
Jan 28, 2020·Seminars in Oncology Nursing·Lynn TannerJessica Sparrow
Nov 24, 2020·Nursing Children and Young People·Stefan NilssonMargaretha Jenholt Nolbris
May 29, 2021·Journal of Food Protection·Carly B GomezBradley P Marks

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