Exploring patient experiences of cancer care in Northern Ireland: A thematic analysis of free-text responses to the 2018 Northern Ireland Patient Experience Survey (NICPES).

BMC Health Services Research
Gillian PrueOlinda Santin

Abstract

Cancer diagnosis, treatment and survivorship is multifaceted, and the cancer patient experience can serve as a key indicator of healthcare performance and quality. The purpose of this paper was to analyse free-text responses from the second Northern Ireland Cancer Patient Experience Survey (NICPES) in 2018, to understand experiences of care, emerging themes and identify areas for improvement. A 72-item questionnaire (relating to clinical care experience, socio-demographics and 3 free-text questions) was distributed to all Health & Social Care Northern Ireland patients that met the inclusion criteria (≥ 16 years old; confirmed primary diagnosis of cancer and discharged between 1st May and 31st October 2017) in June 2018. Participants could complete the questionnaire online or access a free telephone support line if required. Open-ended free text responses were analysed thematically to identify common themes. Free text responses were divided into positive or negative comments. In total, 3,748 people responded to the survey, with 2,416 leaving at least one free text comment (69 %). Women aged 55-74 years were most likely to comment. Overall, 3,644 comments were left across the three comments boxes, which were categorised as either...Continue Reading

References

Jul 8, 1995·BMJ : British Medical Journal·N Mays, C Pope
Jan 25, 2002·European Journal of Cancer Care·M B McIllmurrayA Al-Hamad
Jan 14, 2004·American Journal of Medical Quality : the Official Journal of the American College of Medical Quality·Aerlyn G Dawn, Paul P Lee
Jan 13, 2006·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Jennifer L MalinKatherine L Kahn
Nov 23, 2006·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Katharine HodgkinsonGerard Wain
Jun 3, 2009·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Douglas W BlayneyMichael Neuss
Nov 4, 2009·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Jo ArmesAlison Richardson
Apr 9, 2013·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Anthea AspreyMartin Roland
Jul 3, 2013·European Journal of Cancer Care·C Wild, N Patera
May 27, 2017·Journal of Education and Health Promotion·Mohammadkarim BahadoriMehdi Raadabadi
Oct 11, 2017·The Medical Clinics of North America·Jean C Yi, Karen L Syrjala
Jul 22, 2018·European Journal of Cancer Care·Kim-Lin ChiewShalini K Vinod

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