Factors affecting health-related quality of life in Thai children with thalassemia

BMC Blood Disorders
Montarat ThavorncharoensapBang-On Ubol

Abstract

Knowledge of the factors associated with health-related quality of life (HRQOL) among patients with thalassemia is essential in developing more suitable clinical, counseling, and social support programs to improve treatment outcomes of these patients. In light of the limited research in this area, this study aims to examine factors associated with HRQOL among children and adolescents with thalassemia in Thailand. A cross-sectional survey was conducted in three selected hospitals in Thailand during June to November 2006. PedsQL 4.0 Generic Core Scale (Thai version) was used to assess HRQOL in 315 thalassemia patients between 5 and 18 years of age. Other related clinical characteristics of the patients were collected via medical record review. The mean (SD) of the total summary score was 76.67 (11.40), while the means (SD) for the Physical Health Summary score and Psychosocial Health Summary score were 78.24 (14.77) and 75.54 (12.76), respectively. The school functioning subscale scored the lowest, with a mean of 67.89 (SD = 15.92). The following factors significantly affected the HRQOL of the patients: age; age at onset of anemia and age at first transfusion; pre-transfusion hemoglobin (Hb) level; receiving a blood transfusion d...Continue Reading

References

Jul 1, 1989·Lancet·M G ZurloS Terzoli
Apr 1, 1995·Archives of Pediatrics & Adolescent Medicine·E A McGlynnA Leibowitz
Sep 1, 1994·The New England Journal of Medicine·N F OlivieriA R Cohen
Jun 11, 1997·JAMA : the Journal of the American Medical Association·C B ForrestC Clancy
Apr 17, 1998·International Journal of Gynaecology and Obstetrics : the Official Organ of the International Federation of Gynaecology and Obstetrics·C WanapirakA Tuggapichitti
Jul 21, 1998·Annals of the New York Academy of Sciences·M Angastiniotis, B Modell
Feb 19, 1999·Medical Care·James W VarniC A Rode
Apr 30, 2002·Journal of Behavioral Medicine·James W VarniIlona S Szer
Apr 30, 2002·Acta Haematologica·J Jaime CaroAndroulla Eleftheriou
Oct 29, 2002·Best Practice & Research. Clinical Haematology·John B Porter, Bernard A Davis
Aug 19, 2003·Indian Journal of Pediatrics·Shubha R Phadke, Savita Agarwal
Mar 17, 2004·Journal of Adolescence·Anna Mikelli, John Tsiantis
Dec 13, 2005·Annals of the New York Academy of Sciences·Caterina Borgna-PignattiA Cnaan
Dec 13, 2005·Annals of the New York Academy of Sciences·P TelferM Angastiniotis
Dec 13, 2005·Annals of the New York Academy of Sciences·Zahra PakbazElliott P Vichinsky
May 23, 2006·Journal of Paediatrics and Child Health·Peninnah OberdorferThira Sirisanthana
Jul 4, 2006·Health and Quality of Life Outcomes·Adriana IsmailGeorgina L Jones
Sep 30, 2006·Health and Quality of Life Outcomes·Linda AbetzDiana Rofail
Jan 16, 2007·Journal of Pediatric Endocrinology & Metabolism : JPEM·Loredana PratelliVincenzo De Sanctis
Sep 6, 2007·Indian Journal of Pediatrics·D ShaligramS K Chaturvedi
Nov 1, 2007·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Richard H OsbornePhoebe Joy Ho
Jan 12, 2008·American Journal of Hematology·Orapan SripichaiSuthat Fucharoen
Jan 17, 2008·Clinical and Experimental Pharmacology & Physiology·K TerziyskiS Kostianev
Aug 22, 2008·Indian Journal of Pediatrics·A P DubeyS Dublish
Nov 7, 2008·Clinical Journal of the American Society of Nephrology : CJASN·Fredric O FinkelsteinSalim Mujais
Oct 3, 2013·Expert Review of Hematology·Ali T TaherM Domenica Cappellini
Jul 18, 2014·International Journal of Gynecological Cancer : Official Journal of the International Gynecological Cancer Society·Shuang YeKeng Shen

Citations

May 4, 2012·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Paskorn SritipsukhoMontarat Thavorncharoensap
Jun 26, 2012·BMC Blood Disorders·Giovanni CaocciGiorgio La Nasa
Nov 22, 2012·Mediterranean Journal of Hematology and Infectious Diseases·Hossein SafizadehMajid Araste
Nov 7, 2015·Annals of Medicine·Farzana A Sayani, Janet L Kwiatkowski
Jan 23, 2013·Journal of Pediatric and Adolescent Gynecology·Abdul Ghani Nur AzurahSonia R Grover
Mar 24, 2011·Child: Care, Health and Development·H F Gharaibeh, M K Gharaibeh
Jan 25, 2011·European Journal of Haematology·Yang-Yang HuangChing-Shan Huang
Aug 21, 2015·Archives of Disease in Childhood·Ali AmidRobert J Klaassen
Jul 25, 2015·Current Opinion in Obstetrics & Gynecology·Benita KnoxSonia R Grover
Jun 12, 2013·Methods : a Companion to Methods in Enzymology·Xuexia LinJin-Ming Lin
Jun 19, 2015·Pediatric Hematology and Oncology·Nonglak BoonchooduangPimlak Charoenkwan
Aug 30, 2014·Journal of Pediatric Hematology/oncology·Mohemmed AjijJagdish Chandra
May 11, 2016·Journal of Pediatric Hematology/oncology·Surekha T MevadaYasser Wali
Sep 9, 2016·Journal of Pediatric Hematology/oncology·Hadeel A-I Abdul-ZahraBahaa A A H Ahmed
Nov 2, 2016·Basic & Clinical Pharmacology & Toxicology·Salma M BahnasawyManal El-Hamamsy
Apr 26, 2017·Hemoglobin·Soheir AdamGhada El-Kamah
Feb 22, 2017·Journal of Pediatric Hematology/oncology·Gulen Tuysuz, Funda Tayfun
Jan 19, 2018·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Tehreem TanveerZahid Ahmed Butt
Feb 1, 2019·Hemoglobin·Humaira Yasmeen, Shahida Hasnain
Feb 10, 2019·Archives of Disease in Childhood·Zahra HoodbhoyBabar S Hasan
May 16, 2020·Health and Quality of Life Outcomes·Asrul Akmal ShafieHamidah Alias
Sep 25, 2020·Pediatric Hematology and Oncology·Pattaporn KaewkongOrawan Louthrenoo
Dec 20, 2020·International Journal of Environmental Research and Public Health·Hani T FadelAhmed M Tarawah
Jan 9, 2021·Health and Quality of Life Outcomes·Asrul Akmal ShafieNoor Syahireen Mohammed
Dec 29, 2020·Hematology·Wasuwit WanchaitanawongPimlak Charoenkwan

Related Concepts

Anemia
Attention
Blood Transfusion
Counseling
Cross-Sectional Studies
Hemoglobin
Hospitals
Research
School
Thalassemia

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