Factors associated with childhood cancer survivors' knowledge about their diagnosis, treatment, and risk for late effects

Journal of Cancer Survivorship : Research and Practice
Iqra A SyedPaul C Nathan

Abstract

While most children with cancer survive their initial disease, cancer therapy places them at risk for late effects (LE). Knowledge of their diagnosis, treatment, and LE risk may motivate survivors to attend long-term follow-up care. The aims of this study were to examine knowledge of cancer history and future risks, and to identify factors associated with such knowledge, in a cohort of childhood cancer survivors. Survivors (i.e., patients finished cancer treatment, regardless of time since completion) aged 15 to 26 years from three Canadian cancer centers were invited to complete a questionnaire that assessed knowledge of cancer history and potential LE of treatments, including five specific LE known to have considerable long-term health impact. Clinical data were extracted from hospital records and used to validate participants' answers. Of 250 participants, 16 (6%) were unable to name their cancer, 79 (32%) had partial or no knowledge of their therapy, and 83 (33%) were unaware of at least some of their risks for LE. Decreasing age (OR for increase in age = 1.2 (1.1-1.4)), having had a renal tumor compared to leukemia (OR = 0.3 (0.1-0.9)), and lacking knowledge about treatment (OR = 0.4 (0.2-0.9)) were associated with lack of...Continue Reading

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Citations

Feb 3, 2016·Journal of Cancer Survivorship : Research and Practice·A Fuchsia HowardArminee Kazanjian
Apr 6, 2016·Frontiers in Psychology·Marianna MasieroGabriella Pravettoni
Apr 4, 2017·Pediatric Blood & Cancer·Stéphane DucassouSophie Ansoborlo
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