Factors related to caregiver strain in ALS: a longitudinal study

Journal of Neurology, Neurosurgery, and Psychiatry
Huub CreemersAnita Beelen

Abstract

To examine the longitudinal associations between caregiver strain and patients' clinical and psychosocial characteristics as well as caregivers' psychosocial characteristics. At 4-month intervals during the 12 months study period, longitudinal data on caregiver strain and patient and caregiver factors potentially associated with caregiver strain were collected from 126 couples, who participated in a randomised controlled trial on the effectiveness of case management in amyotrophic lateral sclerosis (ALS). Caregiver strain was assessed with the Caregiver Strain Index (CSI). Patient and caregiver factors included sociodemographic characteristics, distress, coping style and perceived quality of care, as well as the patient's functional status and emotional functioning. Multilevel regression analyses were performed. Caregiver strain increased significantly during the study period (β=0.315 points/months, p<0.001) and was significantly associated with patient time-dependent factors functional status (β=-0.131 points/months, p<0.001) and emotional functioning (β=0.022 points/months, p=0.03), and caregiver time-dependent factors passive coping style (β=0.152 points/months, p=0.03), symptoms of anxiety (β=0.186 points/months, p<0.001) a...Continue Reading

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Citations

Jul 4, 2017·Palliative Medicine·Jessica de WitAnita Beelen
Nov 23, 2017·Neurodegenerative Disease Management·Anne Hogden, Ashley Crook
Feb 27, 2018·Health & Social Care in the Community·Sabrina CipollettaArianna Palmieri
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Jan 14, 2021·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Jashelle CagaOlivier Piguet

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