Family caregivers experiences of formal care when caring for persons with dementia through the process of the disease

Scandinavian Journal of Caring Sciences
Connie LethinAnn-Christin Janlöv

Abstract

Family caregivers' experiences of formal care when caring for persons with dementia through the process of the disease is sparsely investigated. To investigate family caregivers' experiences of formal care when caring for a person with dementia, through the stages of the disease. A qualitative approach with focus group interviews. Four focus group interviews were conducted in October 2011 with 23 spouses and adult children of persons with dementia and analysed with content analysis. The participants' experiences of formal care when caring for a person with dementia were captured in the theme 'Family caregiving requires collaboration with formal care to get support adjusted to needs specific to the stages of dementia'. This can be broken down into the categories 'The dementia diagnosis - entry into formal care as a novice family caregiver', 'Needing expanded collaboration with formal care to continue care at home' and 'Being dependent on a nursing home and trying to maintain involvement'. Family caregiving requires collaboration with formal care to get support adjusted to the individual's needs, specific to the stages of dementia. Caregivers experience a transition process with three main turning points: the dementia diagnosis; ...Continue Reading

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Citations

Apr 23, 2016·The Gerontologist·Marita McCabeGemma Tatangelo
Sep 5, 2017·Scandinavian Journal of Caring Sciences·Christina BökbergStaffan Karlsson
May 22, 2019·Scandinavian Journal of Caring Sciences·Maria SöderbergUlla Melin Emilsson
Oct 18, 2018·BMC Health Services Research·Connie LethinIngalill Rahm Hallberg
Jan 13, 2021·Journal of Advanced Nursing·Hsin-Yun LiuChun-Hsia Huang
Feb 4, 2021·Dementia·Elizabeth L DalgarnoPaul Clarkson
Jul 22, 2021·Research in Gerontological Nursing·Christine DiLeone

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