Family caregivers' support needs after brain injury: a synthesis of perspectives from caregivers, programs, and researchers

NeuroRehabilitation
Caron GanKathryn Boschen

Abstract

There is a dearth of support for family members who assume caregiving responsibilities following acquired brain injury (ABI). This qualitative study broadens the understanding of ABI caregiver support needs through data triangulation from multiple interview sources across different settings. Thirty-nine caregivers across urban and rural settings in Ontario participated in focus groups. Interviews focused on ABI support services received, their utility, access barriers, needed supports, and suggestions for service delivery. Key informant interviews were also held with four US researchers funded through the TBI Model Systems, one Canadian provincial government health official, and representatives from 11 Ontario ABI programs including two brain injury associations. Interviews focused on existing or proposed caregiver programs and gaps in services. A coding framework was developed through content analysis, centring on five themes: coping, supports that worked, supports needed, barriers, and ideal world recommendations. Perspectives from those involved in receiving, providing and researching caregiver interventions following ABI were synthesized to provide a thorough, detailed depiction of the ongoing support needs of caregivers. T...Continue Reading

Citations

Jan 25, 2019·Brain Injury : [BI]·Caron Gan, F Virginia Wright
Nov 7, 2019·The Journal of Head Trauma Rehabilitation·Lenore HawleyKristen Dams-OʼConnor
Mar 12, 2013·The Journal of Head Trauma Rehabilitation·Jennifer FlemingPetrea Cornwell
Jun 2, 2020·Disability and Rehabilitation·Tamara Ownsworth, Lina Karlsson
Apr 1, 2011·Occupational Therapy in Health Care·Jennifer BrauerGerard Francisco
Mar 30, 2016·The Journal of Head Trauma Rehabilitation·Janet M PowellKathleen R Bell
Jun 23, 2015·The Journal of Head Trauma Rehabilitation·Flora M HammondMark A Hirsch
May 9, 2015·Brain Injury : [BI]·Bryony Kitter, Rachael Sharman
Aug 11, 2015·African Journal of Disability·Mandi Broodryk, Chrisma Pretorius
Aug 21, 2015·The Journal of Head Trauma Rehabilitation·Thecla DamianakisDeirdre R Dawson
Dec 24, 2015·Disability and Rehabilitation·Sarah T DoyleJuan Carlos Arango-Lasprilla
Feb 9, 2016·Brain Injury : [BI]·Alison H TverdovSharon Lee Armstrong
Sep 24, 2016·Journal of Social Work in Disability & Rehabilitation·Lyndal HickeyBrigid Jordan
Sep 4, 2019·The Journal of Head Trauma Rehabilitation·Natalie KreitzerOpeolu Adeoye
Jul 1, 2020·Brain Injury : [BI]·Caron GanF Virginia Wright
Jan 7, 2021·Research on Child and Adolescent Psychopathology·Allison P FisherShari L Wade
Jan 26, 2021·Archives of Physical Medicine and Rehabilitation·Flora M HammondAndrew M Ball

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brain injury after impact to the head is due to both immediate mechanical effects and delayed responses of neural tissues.

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