Family Caregivers Who Would Be Unwilling to Provide Care at the End of Life Again: Findings from the Health Survey for England Population Survey

PloS One
Miriam J JohnsonDavid C Currow

Abstract

Family caregivers provide significant care at the end of life. We aimed to describe caregiver characteristics, and of those unwilling to repeat this role under the same circumstances. Observational study of adults in private households (Health Survey for England [HSE]). Caregiving questions included: whether someone close to them died within past 5 years; relationship to the deceased; provision, intensity and duration of care; supportive/palliative care services used; willingness to care again; able to carry on with life. Comparison between those willing to care again or not used univariable analyses and an exploratory multiple logistic regression. A descriptive comparison with Health Omnibus Survey (Australia) data was conducted. HSE response was 64%. 2167/8861 (25%) respondents had someone close to them die in the previous 5 years. Some level of personal care was provided by 645/8861 (7.3%). 57/632 (9%) former caregivers would be unwilling to provide care again irrespective of time since the death, duration of care, education and income. Younger age (≤65; odds ratio [OR] 2.79; 95% CI 136, 5.74) and use of palliative care services (odds ratio: 1.95, 95% CI: 1.09, 3.48) showed greater willingness to provide care again. Apart fr...Continue Reading

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Citations

May 5, 2016·Journal of Social Work in End-of-life & Palliative Care·Debra Parker Oliver
Jul 6, 2017·Death Studies·John P RosenbergKerrie Noonan
Aug 5, 2021·Health Psychology and Behavioral Medicine·Mikołaj Zarzycki, Val Morrison
Aug 5, 2021·Medical Care·Megan E Shepherd-BaniganNina R Sperber

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