Family member perspectives of deceased relatives' end-of-life options on admission to a palliative care unit in Japan.

Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer
Kazuki SatoYasuo Shima

Abstract

Our goal was to better facilitate the desire of terminally ill patients to die in a favorite place, which may not always be the case for patients admitted to palliative care units. Our aims were to assess the perspectives of bereaved family members about (1) available and preferred places of care when their ill loved one was admitted to a palliative care unit and (2) why patients preferred to live at home but could not. A questionnaire was answered by 407 of 663 bereaved family members of cancer patients who were admitted to 95 inpatient palliative care units in Japan. Seventy-three percent of respondents answered that a palliative care unit was the only available option. Patients lacking other places for care preferred their home (49%), a hospital (26%), or a long-term care facility (28%). Only 9% retrospectively considered that living at home was feasible for the following reasons: anxiety about the patient's deteriorating physical condition (85%), insufficient care at home compared to a hospital (84%), imminent hospitalization (63%), and the patient's concern about being burdensome (60%). Seventy-three percent of terminally ill cancer patients admitted to palliative care units had no other options for care. Improving outpati...Continue Reading

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Citations

Mar 26, 2013·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Sarah A BirkenBryan J Weiner
Dec 10, 2014·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Hitoshi TanimukaiYasuo Shima
Apr 5, 2013·The American Journal of Hospice & Palliative Care·Koji AmanoTatsuya Morita
Mar 16, 2017·Asia-Pacific Journal of Clinical Oncology·Jonas NilssonStefan Bergström
Sep 7, 2017·The American Journal of Hospice & Palliative Care·Makiko SanjoYasuo Shima

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