Family perceptions of the impacts of a home and community based services autism waiver: Making family life possible

Journal of Applied Research in Intellectual Disabilities : JARID
Karen Goldrich Eskow, Jean Ann Summers

Abstract

An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home- and community-based services (HCBS) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. This study used qualitative research methods to explore parent perspectives about the impact of HCBS Waiver services on the child/youth with autism and their family. In-depth interviews focused on aspects of the programme they valued, identification of barriers and general issues they experienced. Results of the qualitative study indicated that improved outcomes could be explained by providers of services who were well-trained, flexible and allowed parents' opportunities for choice regarding provision of services to meet child/youth and family needs. The findings of this study provide guideposts for further research about factors that contribute to satisfaction of families receiving waiver services for quality of life and child progress.

References

Jan 5, 2000·Developmental Medicine and Child Neurology·P Howlin, A Asgharian
Jan 13, 2004·Journal of Autism and Developmental Disorders·Marsha Mailick SeltzerCatherine Lord
Feb 26, 2004·Journal of Child Psychology and Psychiatry, and Allied Disciplines·Patricia HowlinMichael Rutter
May 1, 2007·Health and Quality of Life Outcomes·Diego MugnoLuigi Mazzone
Dec 7, 2007·Journal of Autism and Developmental Disorders·Li-Ching LeeCraig J Newschaffer
Jul 23, 2008·Journal of the American Academy of Child and Adolescent Psychiatry·Emily SimonoffGillian Baird
Aug 19, 2008·Journal of Autism and Developmental Disorders·Paul R Benson, Kristie L Karlof
Nov 26, 2010·Journal of Autism and Developmental Disorders·Rahul KhannaBarbara Becker-Cottrill
Dec 3, 2010·Disability and Health Journal·Catherine RiceMarshalyn Yeargin-Allsopp
Aug 8, 2012·Clinical Child and Family Psychology Review·Jeffrey S Karst, Amy Vaughan Van Hecke
Jan 31, 2013·Intellectual and Developmental Disabilities·Mary C RizzoloDavid Braddock
Sep 24, 2013·Journal of Autism and Developmental Disorders·Maria T TimberlakeGiuseppina Chiri
Nov 8, 2013·Journal of Autism and Developmental Disorders·Suzanna N Russell-SmithAndrew J O Whitehouse
Dec 20, 2013·Autism : the International Journal of Research and Practice·Rini VohraClaire St Peter
Feb 8, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Amaria BaghdadliCécile Rattaz
Jun 11, 2014·Autism : the International Journal of Research and Practice·Barbara BarrettSarah Byford
Jul 26, 2014·Intellectual and Developmental Disabilities·Zuleyha CidavDavid S Mandell
Jul 30, 2014·Journal of Autism and Developmental Disorders·Ashley C WoodmanMarsha R Mailick
Sep 4, 2014·Journal of Autism and Developmental Disorders·Karen Goldrich EskowJean Ann Summers
Oct 21, 2014·Journal of Intellectual Disability Research : JIDR·M E WarfieldM Timberlake
Feb 26, 2015·American Journal on Intellectual and Developmental Disabilities·Susan L ParishMorgan K Crossman
Mar 25, 2015·Journal of Autism and Developmental Disorders·Wei Wei LaiMin Sung
May 8, 2015·Autism : the International Journal of Research and Practice·Ami Tint, Jonathan A Weiss
Jun 20, 2015·Autism : the International Journal of Research and Practice·Diana L VelottDouglas L Leslie
Jul 5, 2015·Journal of Autism and Developmental Disorders·Billie Margaret Jean SearingRebecca Grainger
Sep 1, 2015·American Journal on Intellectual and Developmental Disabilities·Thomas L BoehmJulie Lounds Taylor
Jun 29, 2016·American Journal on Intellectual and Developmental Disabilities·Nancy A MillerGregory S Chasson
Feb 20, 2017·Journal of Autism and Developmental Disorders·Austin C Cohrs, Douglas L Leslie
Dec 8, 2017·Journal of Autism and Developmental Disorders·Daniel ShepherdKelly Ty
Apr 28, 2018·MMWR. Surveillance Summaries : Morbidity and Mortality Weekly Report. Surveillance Summaries·Jon BaioNicole F Dowling

❮ Previous
Next ❯

Citations

Sep 25, 2021·Journal of Applied Research in Intellectual Disabilities : JARID·Calliope HolingueRebecca Landa

❮ Previous
Next ❯

Related Concepts

Related Feeds

Autism

Autism spectrum disorder is associated with challenges with social skills, repetitive behaviors, and often accompanied by sensory sensitivities and medical issues. Here is the latest research on autism.