Feasibility of Social Media Recruitment for Orofacial Cleft Genetic Research.

The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association
G. CarlockElizabeth J Leslie

Abstract

This study assessed the feasibility of unpaid social media advertising to recruit participants affected with an orofacial cleft (OFC) for a genetic study. This is a retrospective analysis of recruitment based on enrollment and participation in a genetic study. Participants completed a series of enrollment surveys, provided saliva samples, and completed postparticipation feedback surveys. Participants were eligible if they or a minor in their care were affected by an OFC, the affected participant was not adopted, and the mother of the affected individual had not taken antiseizure medication during pregnancy. Success of recruitment was evaluated from the number of enrolled participants and sample return rate. In the first 12 months of recruitment, 313 individuals completed initial screening surveys; of these, 306 participants were eligible. A total of 263 individuals completed all online surveys and were sent DNA sample kits. One hundred sixty-two subject DNA samples were returned within 12 months of sending, for a return rate of 62%. Approximately two-thirds (66.3%) of all returned samples were sent back within the first 6 weeks after receiving DNA kits. Unpaid social media advertising enabled the recruitment of a large cohort o...Continue Reading

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