Feeling at risk: how women interpret their familial breast cancer risk

American Journal of Medical Genetics. Part a
Sandra van DijkJob Kievit

Abstract

Women's inaccuracy in recalling their breast cancer risk, even immediately after genetic counseling, has received much attention. However, scarce data are available about how women describe their risk in their own words and about what the risk information actually means to them. The present study aims to address interpretations questions and to assess whether these are congruent with the objective risk. Face-to-face interviews were conducted with 123 women immediately after their (initial) counseling session. N-Vivo software was used to describe the data. The level of accuracy of recall depended strongly on the leniency of the criterion applied. For example, the level of verbal accuracy ranged from 25.8% (an exact match with the verbal label) to 98.4% (a more global awareness of having a high versus a low risk). In assessing the significance of personal risk information, we identified a wide variety of risk beliefs, and stress and coping responses. In general, women associated their risk with the medical options, for example, breast screening, that were available for them given their risk status. The results indicate that the accuracy of recall might be a limited outcome measure for the effectiveness of genetic counseling. Firs...Continue Reading

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Citations

Dec 20, 2011·Journal of Genetic Counseling·Erynn S GordonBarbara A Bernhardt
Jun 16, 2009·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·David S WeinbergEric Bieber
Mar 2, 2011·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Joël VosAad Tibben
Dec 3, 2014·Patient Education and Counseling·Akke AlbadaMargreet G E M Ausems
Dec 19, 2006·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Susan LaRusse EckertRobert C Green

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