Fibromyalgia Impact Reduction Using Online Personal Health Informatics: Longitudinal Observational Study

Journal of Medical Internet Research
William CollingePaul Yarnold

Abstract

Personal health informatics have the potential to help patients discover personalized health management strategies that influence outcomes. Fibromyalgia (FM) is a complex chronic illness requiring individualized strategies that may be informed by analysis of personal health informatics data. An online health diary program with dynamic feedback was developed to assist patients with FM in identifying symptom management strategies that predict their personal outcomes, and found reduced symptom levels associated with program use. The aim of this study was to determine longitudinal associations between program use and functional impact of FM as measured by scores on a standardized assessment instrument, the Fibromyalgia Impact Questionnaire (FIQ). Participants were self-identified as diagnosed with FM and recruited via online FM advocacy websites. Participants used an online health diary program ("SMARTLog") to report symptom ratings, behaviors, and management strategies used. Based on single-subject analysis of the accumulated data over time, individualized recommendations ("SMARTProfile") were then provided by the automated feedback program. Indices of program use comprised of cumulative numbers of SMARTLogs completed and SMARTPro...Continue Reading

Associated Clinical Trials

References

Apr 17, 2009·The Journal of Rheumatology·Robert M BennettAlesia B Sadosky
May 6, 2011·American Journal of Preventive Medicine·Larry GoldbergBen Shneiderman
May 21, 2016·Yearbook of Medical Informatics·G Demiris
Oct 18, 2019·Worldviews on Evidence-based Nursing·Li-Ying LinRuey-Hsia Wang

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Software Mentioned

SMARTProfile
SMARTLogs
CONSORT
SMARTLog
AwareHealth

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