Finding a pathway: information and uncertainty along the prostate cancer patient journey

British Journal of Health Psychology
V NantonJ Dale

Abstract

To investigate the role of information in mediating the potential negative effects of uncertainty in prostate cancer in relation to the individual patient journey, conceptualized as the individual's response to his disease over time. A qualitative methodology was adopted to investigate men's constructions of their experience of information and its changing role in the management of uncertainty along the pathway of care. A cross-sectional design allowed comparison of the responses of men at similar stages and along different time points in the cancer pathway. Data collection was undertaken via focus group discussions and individual interviews. Men from 4 weeks post-diagnosis to palliative care were recruited from hospital out-patient clinic registers and a local support group. Seven focus groups and 22 semi-structured interviews were held involving a total of 22 participants. Transcripts were analysed through a process of theme comparison. Findings suggest that uncertainty is both multifaceted and changing. Its impact is affected by a range of personal, disease related, and social factors. For some men it may bring about positive readjustment rather than a negative response. Effective communication of information by health profe...Continue Reading

References

Feb 1, 1992·Western Journal of Nursing Research·N S Redeker
Jan 1, 1990·Image--the Journal of Nursing Scholarship·M H Mishel
Jan 1, 1988·Image--the Journal of Nursing Scholarship·M H Mishel
Jan 1, 1988·Social Science & Medicine·C G BlanchardE B Blanchard
Dec 7, 1984·JAMA : the Journal of the American Medical Association·W M StrullG Charles
Sep 1, 1981·Nursing Research·M H Mishel
Jun 1, 1980·Annals of Internal Medicine·B R CassilethV March
Jul 1, 1993·Journal of Advanced Nursing·K Teasdale
Mar 1, 1996·ANS. Advances in Nursing Science·N J Crigger
Sep 21, 1996·BMJ : British Medical Journal·C MeredithL Fallowfield
Jun 1, 1997·Cancer Nursing·B J Davison, L F Degner
May 9, 1998·Cancer Practice·B B GerminoJ Mohler
Jun 10, 1983·Sociology of Health & Illness·K Charmaz
Sep 17, 1999·BMJ : British Medical Journal·A Towle, W Godolphin
Jan 22, 2000·BMJ : British Medical Journal·C PopeN Mays
Jan 19, 2000·Medical Decision Making : an International Journal of the Society for Medical Decision Making·D Feldman-StewartW J Mackillop
Mar 31, 2000·BMJ : British Medical Journal·G M LeydonK McPherson
Jul 13, 2000·European Journal of Cancer Care·B van der Molen
Aug 8, 2001·Journal of Advanced Nursing·H R Templeton, V E Coates
Feb 19, 2002·Social Science & Medicine·Carol ThomasJuliet C Harman
Jul 24, 2002·Patient Education and Counseling·Ray JonesJim McEwen
Sep 26, 2002·European Journal of Cancer Care·J Q Tritter, M Calnan
Mar 19, 2003·Patient Education and Counseling·Eric W BobergAndrew Salner
May 31, 2003·Issues in Mental Health Nursing·Dale E BrashersSally Nemeth
Jun 18, 2003·Urology·Carole B PinnockUNKNOWN Education Committee of the Australian Prostate Cancer Collaboration
Jan 1, 2004·Family Practice·Howard Cohen, Nicky Britten
Feb 6, 2004·Health Psychology : Official Journal of the Division of Health Psychology, American Psychological Association·Patricia L Tomich, Vicki S Helgeson
Sep 11, 2004·Qualitative Health Research·Alison Chapple, Sue Ziebland
Oct 13, 2004·Patient Education and Counseling·Andrea Docherty
Nov 5, 2004·Cancer Nursing·Donald E BaileyJames Mohler
Nov 18, 2004·Health Psychology : Official Journal of the Division of Health Psychology, American Psychological Association·Charles S Carver, Michael H Antoni
May 27, 2005·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Jody Pelusi, Linda U Krebs
Dec 24, 2005·Health Communication·A S BabrowL A Ford
Sep 13, 2006·Patient Education and Counseling·Maarten FischerJozien Bensing
Sep 25, 2007·Patient Education and Counseling·Katherine A O'LearyCeinwen Cumming

❮ Previous
Next ❯

Citations

Feb 10, 2012·World Journal of Urology·Pia BaderJan H Vranken
Apr 14, 2010·Journal of Assisted Reproduction and Genetics·Shauna L GardinoTeresa K Woodruff
May 3, 2011·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Mariko L CareyAnthony Shakeshaft
Nov 21, 2012·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Karolina A KazimierczakSara J MacLennan
Dec 23, 2015·British Journal of Health Psychology·Veronica NantonScott Murray
Feb 26, 2009·BJU International·Veronica Nanton, Jeremy Dale
Oct 10, 2012·BJU International·Veronica Nanton, Jeremy Dale
Mar 3, 2012·Journal of Nursing Management·Britt S HansenElisabeth Severinsson
Sep 11, 2014·European Journal of Cancer Care·L AppletonM Pagett
Oct 9, 2015·JBI Database of Systematic Reviews and Implementation Reports·David Busolo, Roberta Woodgate
Oct 25, 2017·Journal of Cancer Survivorship : Research and Practice·Jason S SpendelowBryony R Fairhurst
May 9, 2019·European Journal of Cancer Care·Lynne GordonMaxine Offredy
Oct 21, 2016·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Arunima DattaAshis Mukhopadhyay
Nov 20, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Melika KalantariMajid Hashemi
Nov 23, 2021·Scandinavian Journal of Primary Health Care·Maja Elisabeth Juul SøndergaardSissel Eikeland Husebø

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