First experience with electronic feedback of the Psychosocial Assessment Tool in pediatric cancer care

Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer
Sasja A SchepersMartha A Grootenhuis

Abstract

The Psychosocial Assessment Tool (PAT) is a brief family screener, identifying families at universal or elevated risk for psychosocial problems. This study aimed to determine the feasibility and usability of the electronic PAT (ePAT) in pediatric cancer care. Eighty-six parents of newly diagnosed children with cancer (0-18 years) agreed to participate and registered at the website www.hetklikt.nu (58%). Seventy-five families completed the ePAT at approximately 1 month post-diagnosis. Answers were transformed into an electronic PROfile (PAT ePROfile) and fed back to the psychosocial team. Team members completed a semi-structured evaluation questionnaire. Feasibility was measured as the percentage of website registrations, completed ePATs, and PAT ePROfiles reviewed or discussed by the team. Usability included perceived match of the PAT ePROfile with the team's own risk estimation, perceived added value, and perceived actions undertaken as a result of the PAT ePROfile. Feasibility was 70% for website registration, 87% for completed ePATs, 85% for PAT ePROfile reviewing, and 67% for ePROfile discussion. Team members reported that the PAT ePROfile matched with their own risk estimation (M = 7.92, SD = 1.88) and did not provide addi...Continue Reading

References

Dec 24, 1997·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·M A Grootenhuis, B F Last
Dec 22, 1999·Journal of the American Academy of Child and Adolescent Psychiatry·J E Hoekstra-WeebersE C Klip
Aug 30, 2003·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Anne E KazakBeverly J Lange
May 10, 2005·Psycho-oncology·Barbara J Wijnberg-WilliamsJosette E H M Hoekstra-Weebers
Sep 19, 2007·Journal of Family Psychology : JFP : Journal of the Division of Family Psychology of the American Psychological Association (Division 43)·Ahna L H PaiCatherine Cant Peterson
Feb 22, 2008·Journal of Pediatric Psychology·C M Jantien Vrijmoet-WiersmaR Maarten Egeler
Apr 26, 2011·Journal of Pediatric Hematology/oncology·Anne E KazakAnne Reilly
May 25, 2011·Psycho-oncology·Josette E H M Hoekstra-WeebersHarry B M van de Wiel
Apr 12, 2012·Pediatric Blood & Cancer·Anne E KazakLamia P Barakat
Aug 24, 2013·Journal of Pediatric Gastroenterology and Nutrition·Ahna L H PaiKevin A Hommel
Feb 4, 2014·CA: a Cancer Journal for Clinicians·Elizabeth WardAhmedin Jemal
Feb 24, 2015·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Niloufar CampbellSam S Salek
Dec 25, 2015·Pediatric Blood & Cancer·Anne E KazakMary Jo Kupst
Jul 12, 2016·Journal of Psychosocial Oncology·Maria C McCarthyLauren K Williams

❮ Previous
Next ❯

Citations

Jul 12, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Leandra DesjardinsMaru Barrera
Dec 8, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Maru BarreraDenise Mills
Apr 15, 2021·Applied Clinical Informatics·Janel HanmerDavid Wolfson

❮ Previous
Next ❯

Software Mentioned

PAT
Psychosocial Assessment Tool ( PAT )
Statistical Package for the Social Sciences ( SPSS )
IMPROVE

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.