Formal support for informal caregivers to older persons with dementia through the course of the disease: an exploratory, cross-sectional study

BMC Geriatrics
Connie LethinRightTimePlaceCare Consortium

Abstract

In European countries, knowledge about availability and utilization of support for informal caregivers caring for older persons (≥65 years) with dementia (PwD) is lacking. To be able to evaluate and develop the dementia support system for informal caregivers to PwD, a survey of European support systems and professionals involved is needed. The aim of this study was to explore support for informal caregivers to PwD in European countries. We investigated the availability and utilization of support in each of the participating countries, and the professional care providers involved, through the dementia disease. A mapping system was used in 2010-2011 to gather information about estimations of availability, utilization, and professional providers of support to informal caregivers caring for PwD. Data collected was representing each country as a whole. There was high availability of counselling, caregiver support, and education from the diagnosis to the intermediate stage, with a decrease in the late to end of life stage. Utilization was low, although there was a small increase in the intermediate stage. Day care and respite care were highly available in the diagnosis to the intermediate stage, with a decrease in the late to end of ...Continue Reading

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Citations

Dec 3, 2016·American Journal of Alzheimer's Disease and Other Dementias·Babak TousiNancy Udelson
Jun 18, 2017·Journal of Advanced Nursing·Paul ClarksonUNKNOWN Members of the HoSt-D (Home Support in Dementia) Programme Management Group
May 22, 2018·Palliative Medicine·Caroline MoganChristopher Dowrick
Sep 5, 2017·Scandinavian Journal of Caring Sciences·Christina BökbergStaffan Karlsson
Apr 5, 2019·Professional Case Management·Phil Harper
Oct 18, 2018·BMC Health Services Research·Connie LethinIngalill Rahm Hallberg
Oct 23, 2019·Health & Social Care in the Community·Merle VarikKai Saks
Oct 11, 2016·Medical Science Monitor : International Medical Journal of Experimental and Clinical Research·Roksana MalakWłodzimierz Samborski
Jun 27, 2019·BMJ Supportive & Palliative Care·Allyn HumMervyn Yong Hwang Koh
Nov 26, 2020·European Geriatric Medicine·George SoulisAthanase Benetos
Nov 13, 2020·Archives of Gerontology and Geriatrics·Soraia TelesConstança Paúl
Mar 21, 2021·BMC Health Services Research·Rosaria Di LorenzoPaola Ferri
Jun 16, 2021·Journal of Aging & Social Policy·Estera WieczorekMilena Pavlova
Sep 1, 2021·BMC Health Services Research·Atiqur Sm-RahmanSusanne Kelfve

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