From activism to secrecy: Contemporary experiences of living with HIV in London in people diagnosed from 1986 to 2014

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
Tanvi RaiHelen Ward

Abstract

Successes in biomedicine have transformed HIV from a debilitating and frequently fatal infection to a chronic, manageable condition. To explore how the contemporary metanarrative of HIV as a chronic condition is understood by patients and how it varies depending on when they were diagnosed. Qualitative interviews with 52 people living with HIV who were diagnosed during different phases in the history of the epidemic. Participants were recruited from two HIV clinics in London to include four "HIV generations": generation 1 were those who had been diagnosed pre-1997 (pre-ART), generation 2 from 1997 to 2005 (complex ART), generation 3 from 2006 to 2012 (simpler ART) and generation 4 diagnosed in the year before the study (2013-2014). Participants in all HIV generations took their medication as prescribed, attended clinic appointments and were well informed about their immunological biomarkers. While the pre-treatment generation had been engaged in community endeavours such as activism, public education and use of support groups, those more recently diagnosed had little experience of collective activities and their HIV was essentially a private matter, separate from their social identity. These strategies worked for some; however,...Continue Reading

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Citations

May 5, 2021·AIDS and Behavior·Hanne M L ZimmermannUNKNOWN HIV Transmission Elimination Amsterdam Initiative (H-TEAM)
Oct 12, 2020·The Lancet. HIV·Ward P H van BilsenUNKNOWN HIV Transmission Elimination Amsterdam Initiative

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