From Engulfment to Enrichment: Associations Between Illness Representations, Self-Concept, and Psychological Adjustment in Mayer-Rokitansky-Küster-Hauser Syndrome.

Journal of Pediatric and Adolescent Gynecology
Susan CarrollRona Moss-Morris

Abstract

Mayer-Rokitansky-Küster-Hauser syndrome (MRKH) is a female reproductive disorder characterized by the absence or underdevelopment of the uterus, cervix and vagina. Limited research has examined factors related to psychological adjustment in MRKH. This study aimed to explore associations among illness representations, self-concept, psychological distress, and self-esteem in MRKH. Cross-sectional. Participants were recruited globally online and from patient meetings. A total of 263 patients with MRKH (age 16.1-74.4 years; mean = 31.7 years) completed questionnaires. None. Validated self-reported measures of psychological distress and self-esteem (outcomes) and illness representations, self-concept, social support-seeking, and positive affect (hypothesized correlates) were explored in correlation and hierarchical regression analyses, alongside demographic and clinical variables. Younger age and shorter time since diagnosis was associated with higher distress and lower self-esteem. Patients with MRKH reported significantly higher distress and lower self-esteem than the general population. Higher distress and lower self-esteem were associated with higher reported engulfment (defining one's identity or feeling consumed by MRKH) and b...Continue Reading

Citations

May 18, 2021·British Journal of Health Psychology·Aisling T O'Donnell, Andrea E Habenicht
Oct 28, 2021·Progress in Transplantation : Official Publication, North American Transplant Coordinators Organization ... [et Al.]·Ann Marie WarrenLiza Johannesson

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