Gaining consensus on family carer needs when caring for someone dying at home to develop the Carers' Alert Thermometer (CAT): a modified Delphi study

Journal of Advanced Nursing
Katherine KnightingBarbara A Jack

Abstract

To report a multi-phase modified Delphi study conducted with carers and professionals to identify the priority areas for inclusion in an alert screening tool for carers providing support to someone dying at home. Internationally, there is a growing emphasis on increasing choice for patients who wish to die at home which relies heavily on care provided by the unpaid family carers. Family carers can have high levels of unmet needs comprising their psychological and physical health and their ability to provide effective care and support. Development of an alert tool to identify carers' needs in everyday practice required identification and consensus of the priority areas of need for inclusion. Multi-phase modified Delphi study and instrument development. Qualitative and quantitative data collection took place between 2011-2013 with 111 carers and 93 professionals to identify carers' needs and gain consensus on the priority areas for inclusion in the alert tool. An expert panel stage and final evidence review post-Delphi were used. The Delphi panels had high levels of agreement and consensus. Ten areas of carer need across two themes of 'the current caring situation' and 'the carer's own health and well-being' were prioritized for ...Continue Reading

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Citations

May 4, 2017·Global Qualitative Nursing Research·Max ZubatskyRobert Martin
Mar 28, 2018·Nursing Standard·Beth Hardy
Jul 8, 2017·Chronic Respiratory Disease·Morag Farquhar
Apr 26, 2018·ERJ Open Research·Carol Ann KellyKatherine Knighting
Oct 30, 2019·Nursing Open·Anett Skorpen TarbergBodil J Landstad
Mar 22, 2019·International Journal of Environmental Research and Public Health·Sara Moreno-CámaraRafael Del-Pino-Casado
Feb 18, 2021·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Annamaria BagnascoLoredana Sasso
Aug 8, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Franziska A HerbstStephanie Stiel

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Software Mentioned

SPSS Statistics
SurveyMonkey
Delphis

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