Gaining perspective on own illness - the lived experiences of a patient education programme for women with treated coeliac disease

Journal of Clinical Nursing
Lisa Ring JacobssonMaria Friedrichsen

Abstract

To explore the lived experiences of women with coeliac disease after attending a patient education programme, to gain a broader perspective of its influence. Adults, particularly women, with coeliac disease report suffering from poor well-being and reduced quality of life in terms of health. Patient education programmes might support and encourage them in the search for possible improvements in lifestyle and in their approach to the disease. A qualitative phenomenological study. Personal narrative interviews with 14 women suffering from coeliac disease who had participated in an educational programme. Data analysis in accordance with Giorgi was performed. The essential structure of women's lived experiences following their participation in the patient education programme was found to be an interaction with others with the same disease, which left the women feeling individually strengthened. The interaction enabled the participants to acquire a broader view of their life with coeliac disease. As a result, this realigned their sense of self in relation to their own disease. In coping with coeliac disease, it seems that women need interaction with others with the disease to experience togetherness within a group, get the opportuni...Continue Reading

References

Apr 28, 2004·Nurse Education Today·Beverly Williams
Feb 28, 2009·Alimentary Pharmacology & Therapeutics·J K H WhitakerR F A Logan
Apr 21, 2009·Patient Education and Counseling·Bev Williams, Ana Emilia Pace
Jun 6, 2009·Journal of Advanced Nursing·Marit RønnevigIngegerd Bergbom
Jun 10, 2009·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Susanne RoosClaes Hallert
Aug 26, 2009·Pediatric Allergy and Immunology : Official Publication of the European Society of Pediatric Allergy and Immunology·Heather MacKenzieTaraneh Dean
Jun 17, 2010·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Rachel D ZordanKendra Sundquist
Aug 14, 2010·Patient Education and Counseling·Sharon LawnMariastella Pulvirenti
Nov 24, 2011·British Journal of Health Psychology·Sibylle PetersenAndreas von Leupoldt
May 24, 2012·European Journal of Gastroenterology & Hepatology·Gisela RingströmMagnus Simrén
Jun 1, 2012·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Lisa Ring JacobssonClaes Hallert
Oct 9, 2012·Journal of Clinical Nursing·Lisa R JacobssonMaria Friedrichsen
Nov 20, 2012·Journal of Human Nutrition and Dietetics : the Official Journal of the British Dietetic Association·M ZarkadasO M Pulido
Dec 5, 2012·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Kristin McMasterNimisha K Parekh
Aug 1, 2013·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Susanne RoosSusan Wilhelmsson
Sep 3, 2013·Scandinavian Journal of Caring Sciences·Anne-Louise BerghFebe Friberg
Jan 8, 2014·JAMA Pediatrics·Stefano Guandalini, Asaad Assiri
Jul 2, 2014·The American Journal of Gastroenterology·Sveta ShahDaniel A Leffler
Apr 30, 2015·United European Gastroenterology Journal·Fabiana ZingoneJulio C Bai

❮ Previous
Next ❯

Citations

Sep 15, 2016·Journal of Clinical Nursing·Julián Rodríguez AlmagroJosé Siles González
Aug 1, 2019·Scandinavian Journal of Caring Sciences·Lisa Ring JacobssonJeanette Eckerblad
May 7, 2019·Scandinavian Journal of Caring Sciences·Julian Rodriguez-AlmagroAntonio Hernandez-Martinez
Jul 24, 2021·Journal of Advanced Nursing·Miriam Donate-ManzanaresLuis Beato-Fernández

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Dimensions of Critical Care Nursing : DCCN
Katherine A Hinderer
Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates
Susanne RoosSusan Wilhelmsson
International Journal of Qualitative Studies on Health and Well-being
Agneta Anderzén-CarlssonElisabeth Westerdahl
© 2021 Meta ULC. All rights reserved