Gaps in Hospice and Palliative Care Research: A Scoping Review of the North American Literature

Journal of Aging Research
Rebecca AntonacciChristopher A Klinger

Abstract

The demand for hospice and palliative care is growing as a result of the increase of an aging population, which is most prominent in North America. Despite the importance of the topic and an increase in hospice and palliative care utilization, there still are gaps in research and evidence within the field. To determine what gaps currently exist in hospice and palliative/end-of-life care research within the context of a North American setting to ensure that future directions are grounded in appropriate evidence. Using Arksey and O'Malley's scoping review framework, six peer-reviewed, and four grey electronic literature databases in healthcare and the social sciences were searched in mid-2019. 111 full-text articles were retrieved, with 25 articles and reports meeting the inclusion criteria. Major themes were identified through thematic context analysis: (1) clinical, (2) system access to care, (3) research methodology, and (4) caregiving-related research gaps. Findings include strategies for engaging stakeholder organizations and funding agencies, implications for other stakeholder groups such as clinicians and researchers, and highlight implications for policy (e.g., national framework discussion) and practice (e.g., healthcare...Continue Reading

References

Feb 28, 2006·Journal of Palliative Medicine·R Sean Morrison
May 9, 2008·The American Journal of Hospice & Palliative Care·Ingrid Agren Bolmsjo
May 18, 2010·Journal of Pain and Symptom Management·Keela HerrXiongwen Tang
Dec 3, 2010·Journal of Pain and Symptom Management·Peter L HudsonDavid Clarke
Nov 1, 2011·Oncology Nursing Forum·Kenneth R White, Patrick J Coyne
Mar 14, 2013·Nursing & Health Sciences·Mojtaba VaismoradiTerese Bondas
Jun 20, 2013·Journal of Palliative Medicine·Christine S Ritchie, Donna M Zulman
Jul 20, 2013·Social Work in Health Care·Frances R Nedjat-HaiemKarl Lorenz
Oct 24, 2013·Journal of Palliative Medicine·Kathleen T Unroe, Diane E Meier
Nov 22, 2013·Palliative Medicine·Catherine Walshe
Apr 4, 2014·Journal of Palliative Medicine·Amy S KelleyChristine S Ritchie
Feb 26, 2015·BMJ Supportive & Palliative Care·Anthony ByrneSarah Townsend
Feb 20, 2016·BMJ Supportive & Palliative Care·Irene J Higginson
Jun 19, 2016·Palliative Medicine·Peter TanuseputroWalter P Wodchis
Jan 6, 2017·Canadian Journal on Aging = La Revue Canadienne Du Vieillissement·Jayna M Holroyd-LeducJasneet Parmar
Jul 12, 2019·Death Studies·Ashton HayLauren J Breen
Jul 16, 2019·BMJ Supportive & Palliative Care·Clare WhiteMiriam J Johnson
Oct 15, 2019·Journal of Pain and Symptom Management·Debra Parker OliverPatrick White

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