Genetic links, family ties, and social bonds: rights and responsibilities in the face of genetic knowledge

The Journal of Medicine and Philosophy
Rosamond Rhodes

Abstract

Currently, some of the most significant moral issues involving genetic links relate to genetic knowledge. In this paper, instead of looking at the frequently addressed issues of responsibilities professionals or institutions have to individuals, I take up the question of what responsibilities individuals have to one another with respect to genetic knowledge. I address the questions of whether individuals have a moral right to pursue their own goals without contributing to society's knowledge of population genetics, without adding to their family's knowledge of its genetic history, and without discovering genetic information about themselves and their offspring. These questions lead to an examination of the presumed right to genetic ignorance and an exploration of a variety of social bonds. Analyzing cases in light of these considerations leads to a surprising conclusion about a widely accepted precept of genetic counseling, to some ethical insights into typical problems, and to some further unanswered questions about personal responsibility in the face of genetic knowledge.

Citations

Mar 11, 2006·Familial Cancer·Béatrice GodardUNKNOWN INHERIT BRCAs
Oct 30, 2001·Critical Reviews in Oncology/hematology·A Surbone
Dec 14, 2011·Cambridge Quarterly of Healthcare Ethics : CQ : the International Journal of Healthcare Ethics Committees·Jonathan Herring, Charles Foster
Mar 9, 2005·Thyroid : Official Journal of the American Thyroid Association·M Sara Rosenthal, Heather Hanson Pierce
Feb 10, 2011·Annals of Oncology : Official Journal of the European Society for Medical Oncology·A Surbone
Nov 22, 2011·Public Health Ethics·Mark Sheehan
May 9, 2006·MCN. the American Journal of Maternal Child Nursing·Rosamond Rhodes
May 21, 2013·Science·Amy L McGuireRobert C Green
Aug 4, 2004·Journal of Medical Ethics·M Hayry
Sep 1, 2005·Journal of Medical Ethics·I de Melo-Martín
May 5, 1999·Journal of Medical Ethics·A Sommerville, V English
Dec 9, 2008·American Journal of Public Health·Fiona Alice MillerRobin Z Hayeems
Mar 1, 2014·The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics·Gert Helgesson
Nov 11, 2008·Critical Reviews in Oncology/hematology·Antonella Surbone
Sep 24, 2004·Epilepsy & Behavior : E&B·Béatrice Godard, Geneviève Cardinal
Mar 3, 2006·Sociology of Health & Illness·Larissa Remennick
Jul 7, 2015·The American Journal of Bioethics : AJOB·Benjamin E BerkmanLeslie G Biesecker
Jul 7, 2015·The American Journal of Bioethics : AJOB·Gabriel Lázaro-MuñozEric T Juengst
Nov 3, 2016·Health Care Analysis : HCA : Journal of Health Philosophy and Policy·Emma C Bullock
Sep 20, 2007·Accountability in Research·Gert HelgessonUlrica Swartling
Dec 21, 2016·The American Journal of Bioethics : AJOB·Rosamond Rhodes
Jan 18, 2018·The Journal of Medicine and Philosophy·Clair Morrissey, Rebecca L Walker
Nov 20, 2012·Medicine, Health Care, and Philosophy·Lisa Bortolotti
Jan 5, 2005·Nature Reviews. Genetics·Bartha Maria Knoppers, Ruth Chadwick
Mar 15, 2018·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Jielu LinLaura M Koehly
Aug 23, 2007·Medicine, Health Care, and Philosophy·Urban Wiesing
Mar 17, 2005·European Journal of Human Genetics : EJHG·Angus ClarkeHelen Stewart
Jul 9, 2013·Journal of Neurology, Neurosurgery, and Psychiatry·Adriano ChiòAntonella Surbone
Jul 10, 2019·American Journal of Medical Genetics. Part B, Neuropsychiatric Genetics : the Official Publication of the International Society of Psychiatric Genetics·Christian LenkBarbara Zoll
May 23, 2019·Cambridge Quarterly of Healthcare Ethics : CQ : the International Journal of Healthcare Ethics Committees·Tuija Takala
Feb 29, 2008·The Oncologist·Rebecca D PentzPamela S Hinds
Jun 3, 2020·Cambridge Quarterly of Healthcare Ethics : CQ : the International Journal of Healthcare Ethics Committees·Tuija Takala, Matti Häyry
May 25, 2015·Medicine, Health Care, and Philosophy·Niels Nijsingh
May 4, 2005·Cadernos de saúde pública·Debora Diniz, Cristiano Guedes
Apr 22, 2015·Medicine, Health Care, and Philosophy·Christian Lenk, Debora Frommeld
May 1, 2020·Journal of Medical Ethics·Lisa Dive, Ainsley Janelle Newson
Apr 10, 2008·Medicine, Health Care, and Philosophy·Paula Boddington, Maggie Gregory
May 1, 2020·Journal of Medical Ethics·Ben Davies
Jul 29, 2004·Annals of Oncology : Official Journal of the European Society for Medical Oncology·A Surbone
Aug 3, 2021·Ethical Theory and Moral Practice : an International Forum·Ben Davies, Julian Savulescu
Oct 2, 2021·The Journal of Medicine and Philosophy·Lisa Dive

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

The Journal of Medicine and Philosophy
Tuija Takala, M Häyry
Annals of Oncology : Official Journal of the European Society for Medical Oncology
A Surbone
© 2022 Meta ULC. All rights reserved