Going home after infant cardiac surgery: a UK qualitative study

Archives of Disease in Childhood
Jenifer TregayKatherine L Brown

Abstract

To qualitatively assess the discharge processes and postdischarge care in the community for infants discharged after congenital heart interventions in the first year of life. Qualitative study using semistructured interviews and Framework Analysis. UK specialist cardiac centres and the services their patients are discharged to. Twenty-five cardiologists and nurses from tertiary centres, 11 primary and secondary health professionals and 20 parents of children who had either died after discharge or had needed emergency readmission. Participants indicated that going home with an infant after cardiac intervention represents a major challenge for parents and professionals. Although there were reported examples of good care, difficulties are exacerbated by inconsistent pathways and potential loss of information between the multiple teams involved. Written documentation from tertiary centres frequently lacks crucial contact information and contains too many specialist terms. Non-tertiary professionals and parents may not hold the information required to respond appropriately when an infant deteriorates, this contributing to the stressful experience of managing these infants at home. Where they exist, the content of formal 'home monito...Continue Reading

References

Jul 31, 2004·Seminars in Thoracic and Cardiovascular Surgery. Pediatric Cardiac Surgery Annual·Nancy S GhanayemJames S Tweddell
Sep 11, 2009·Congenital Heart Disease·Chandra SrinivasanRobert D B Jaquiss
Mar 15, 2011·The Journal of Thoracic and Cardiovascular Surgery·Nancy C DobroletEvan M Zahn
Jun 28, 2011·The Journal of Thoracic and Cardiovascular Surgery·Christopher J PetitElena C Ocampo
Jan 6, 2012·European Journal of Cardio-thoracic Surgery : Official Journal of the European Association for Cardio-thoracic Surgery·Jan H HansenHans-Heiner Kramer
Dec 4, 2012·Journal of Paediatrics and Child Health·Kate BradmanElaine Pascoe
Sep 21, 2013·BMC Medical Research Methodology·Nicola K GaleSabi Redwood

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Citations

Aug 6, 2019·Cardiology in the Young·Luise V MarinoAnne-Sophie Darlington
Sep 3, 2019·American Journal of Critical Care : an Official Publication, American Association of Critical-Care Nurses·Flerida Imperial-Perez, MarySue V Heilemann
Mar 14, 2020·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Pei-Fen PohKaris Kin Fong Cheng
May 1, 2018·Cardiology in the Young·Luise V MarinoUNKNOWN British Dietetic Association Paediatric Cardiology Interest Group
Sep 14, 2019·Cardiology in the Young·Robyn R LottoAttilio A Lotto
Aug 31, 2019·Journal for Specialists in Pediatric Nursing : JSPN·Mirjam ThomiElisabeth Spichiger
Aug 12, 2018·Journal for Specialists in Pediatric Nursing : JSPN·Sarita March, Jessica Keim-Malpass
Dec 4, 2019·Journal for Specialists in Pediatric Nursing : JSPN·Karen F PridhamKathleen Mussatto
Mar 16, 2021·Nursing Children and Young People·Sana Amla, Jane Chudleigh

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Software Mentioned

Framework Analysis

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