Grief and loss for patients before and after heart transplant

Heart & Lung : the Journal of Critical Care
Jennifer PooleHeather Ross

Abstract

The purpose of the study was to examine the loss and grief experiences of patients waiting for and living with new hearts. There is much scholarship on loss and grief. Less attention has been paid to these issues in clinical transplantation, and even less on the patient experience. Part of a qualitative inquiry oriented to the work of Merleau-Ponty, a secondary analysis was carried out on audiovisual data from interviews with thirty participants. Patients experience loss and three forms of grief. Pre-transplant patients waiting for transplant experience loss and anticipatory grief related to their own death and the future death of their donor. Transplanted patients experience long-lasting complicated grief with respect to the donor and disenfranchised grief which may not be sanctioned. Loss as well as anticipatory, complicated and disenfranchised grief may have been inadvertently disregarded or downplayed. More research and attention is needed.

References

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Citations

Mar 7, 2017·Journal of Korean Academy of Nursing·Younghui Hwang, Myungsun Yi
Oct 4, 2017·Medical Humanities·Margrit ShildrickHeather Ross
Aug 1, 2020·International Journal of Environmental Research and Public Health·Catharina LindbergAnna Forsberg
Feb 2, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Cebeci FatmaBayezid Omer

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