Guidance and Ethical Considerations for Undertaking Transgender Health Research and Institutional Review Boards Adjudicating this Research

Transgender Health
Noah AdamsKai Cheng Thom

Abstract

The purpose of this review is to create a set of provisional criteria for Institutional Review Boards (IRBs) to refer to when assessing the ethical orientation of transgender health research proposals. We began by searching for literature on this topic using databases and the reference lists of key articles, resulting in a preliminary set of criteria. We then collaborated to develop the following nine guidelines: (1) Whenever possible, research should be grounded, from inception to dissemination, in a meaningful collaboration with community stakeholders; (2) language and framing of transgender health research should be non-stigmatizing; (3) research should be disseminated back to the community; (4) the diversity of the transgender and gender diverse (TGGD) community should be accurately reflected and sensitively reflected; (5) informed consent must be meaningful, without coercion or undue influence; (6) the protection of participant confidentiality should be paramount; (7) alternative consent procedures should be considered for TGGD minors; (8) research should align with current professional standards that refute conversion, reorientation, or reparative therapy; and (9) IRBs should guard against the temptation to avoid, limit, ...Continue Reading

References

Feb 1, 1993·Archives of Sexual Behavior·K J ZuckerC B Lowry
Jun 8, 2001·American Journal of Public Health·L Feinberg
Feb 22, 2003·Journal of the American Academy of Child and Adolescent Psychiatry·Simon D Pickstone-Taylor
Dec 17, 2010·Advances in Health Sciences Education : Theory and Practice·E-shien ChangXinQi Dong
Jan 11, 2011·Clinical Child Psychology and Psychiatry·Thomas D SteensmaPeggy T Cohen-Kettenis
Oct 20, 2011·Health Communication·Keith J HorvathWalter Bockting
Nov 6, 2012·Journal of Child and Adolescent Psychiatric Nursing : Official Publication of the Association of Child and Adolescent Psychiatric Nurses, Inc·Laura C Hein, Kathrene C Berger
Mar 26, 2013·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·UNKNOWN Society for Adolescent Health and Medicine
May 1, 2012·Social Science Computer Review·Michael H MinerSivakumaran Raman
Jul 18, 2014·Archives of Sexual Behavior·Sari L ReisnerMatthew J Mimiaga
Sep 19, 2014·The Hastings Center Report·Celia B Fisher, Brian Mustanski
Jan 1, 2013·Ethnicity and Inequalities in Health and Social Care·Kevin JeffersonJae Sevelius
May 12, 2015·Annals of Internal Medicine·Hilary DanielUNKNOWN Health and Public Policy Committee of American College of Physicians
Oct 13, 2015·Qualitative Research : QR·Benjamin SaundersCelia Kitzinger
Dec 15, 2015·The American Psychologist·UNKNOWN American Psychological Association
Apr 27, 2016·British Journal of Cancer·John BridgewaterHarpreet Wasan
Jun 22, 2016·Lancet·Sari L ReisnerStefan D Baral
Jun 22, 2016·Lancet·Sam WinterKevan Wylie
Jul 20, 2016·Journal of Acquired Immune Deficiency Syndromes : JAIDS·Sari L ReisnerMadeline B Deutsch

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Citations

Aug 1, 2018·Journal of Autism and Developmental Disorders·Reubs J WalshSander Begeer
Mar 27, 2019·Journal of Homosexuality·Kyle K H TanJaimie F Veale
Apr 5, 2019·Perspectives on Psychological Science : a Journal of the Association for Psychological Science·Raymond P Tucker
Oct 10, 2018·The British Journal of Sociology·Michael Toze
Jan 25, 2020·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Lucille KerrTiffany Jones
Mar 3, 2020·JCO Oncology Practice·Elizabeth S TarrasGwendolyn P Quinn
May 2, 2019·Transgender Health·Hilary MabelCecile A Ferrando
Jul 15, 2020·International Journal of Impotence Research·Guy T'Sjoen, Justine Defreyne
Oct 24, 2019·Transgender Health·Kieran ToddRob Stephenson
Oct 6, 2020·International Journal of Transgender Health·Qi ZhangEli Coleman
Dec 25, 2019·Transgender Health·Heather E Schier, Whitney R Linsenmeyer
Sep 17, 2020·International Journal of Environmental Research and Public Health·Mark HenricksonAlexandre Baril
Aug 16, 2019·The International Journal of Transgenderism·Annette BrömdalKirstie Daken
Dec 29, 2020·Journal of Genetic Counseling·Alexander M von Vaupel-Klein, Reubs J Walsh
Mar 3, 2021·The Journal of Sexual Medicine·Gaines BlasdelLee C Zhao
Feb 25, 2021·Health Sociology Review : the Journal of the Health Section of the Australian Sociological Association·Adam Shepherd, Benjamin Hanckel
Mar 7, 2021·International Journal of Environmental Research and Public Health·Maria Victoria Carrera-FernándezYolanda Rodríguez-Castro
Apr 11, 2021·Journal of Pediatric and Adolescent Gynecology·Colleen A Reynolds, Brittany M Charlton
Apr 20, 2021·Public Health Nutrition·Sávio Marcelino GomesLuiz Ra Noro
Aug 21, 2021·Transgender Health·Anna KirklandAngela K Perone
Aug 24, 2021·Parenting, Science and Practice·Susan ImrieSusan Golombok
Sep 3, 2021·Journal of the American Medical Informatics Association : JAMIA·Kacie M KiddRobert W S Coulter
Sep 3, 2021·Journal of the International AIDS Society·Ana María Del Río-GonzálezMaria Cecilia Zea
Oct 3, 2021·BMC Medical Research Methodology·Andrew AsquithSari L Reisner

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