Haemophilia care in Latin America: Assessment and perspectives

Haemophilia : the Official Journal of the World Federation of Hemophilia
Apsara BoadasDani Ugalde

Abstract

The study is the first application of the Principles of Haemophilia Care for Europe (PHCE) in other regions of the world, specifically in Latin America. To identify strengths in the care of haemophilia, and the aspects that should be improved. The information was obtained through a questionnaire designed according to the PHCE and answered by specialists in mid-2016. The countries included were as follows: Argentina, Brazil, Chile, Colombia, Costa Rica, El Salvador, Mexico, Panama, Dominican Republic and Venezuela. In most countries, there is a central organization for haemophilia care supported by local groups. The existence of a national registry of people with haemophilia (PWH) was verified in eight countries. Centres of integrated care are located in large cities. In the majority of countries, there was no evidence of the participation of multiple actors in the decision-making. The supply of factor concentrates presents constraints, although it is reported as adequate in half of the countries. In most countries, home treatment is available under special conditions. In most countries, there are restrictions on the use of prophylaxis. The coordination of specialized and emergency services depends on each centre. Unrestricted t...Continue Reading

References

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Citations

Jul 9, 2020·Haemophilia : the Official Journal of the World Federation of Hemophilia·Ulrike M ReissTsukasa Ohmori
Sep 7, 2020·Haemophilia : the Official Journal of the World Federation of Hemophilia·Luisa Fernanda AlvisSergio Robledo

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