Health education and empowerment in adult patients with haemophilia

Expert Review of Hematology
Hortensia De la Corte-RodriguezVictor Jimenez-Yuste

Abstract

Introduction: The purpose of this study is to evaluate the degree of education and empowerment of the patients of the Haemophilia Unit at 'La Paz' University Hospital (Madrid, Spain).Materials and methods: Haemophilic patients attending routine haemophilia consultations were asked to complete a questionnaire with a view to determining the patient´s perceived knowledge about the disease; their ability to make individual and group decisions; and whether the frequency of their hospital visits could be reduced.Results: Patients were shown to have ample knowledge about the disease. Knowledge had been acquired chiefly through personal experience and from the interaction with healthcare providers. Nearly 70% of patients felt capable of making decisions on matters affecting their health. Over half of the patients considered that their hospital visits could be reduced if they had more information. Patients experiencing the largest number of bleeding episodes were those showing the highest levels of empowerment. Over half the patients were satisfied with the institutional support they received.Conclusion: These patients with haemophilia are in general reasonably empowered on account of their personal experiences and their interaction wit...Continue Reading

References

May 16, 2002·Haemophilia : the Official Journal of the World Federation of Hemophilia·B Steinhart
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Nov 8, 2006·Medicine, Health Care, and Philosophy·Per-Anders Tengland
Dec 17, 2011·Haemophilia : the Official Journal of the World Federation of Hemophilia·J NilsonC Jarock
May 29, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Kate KhairFaith Gibson
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May 15, 2015·PloS One·Paul J BarrMarion McAllister
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Jan 1, 2017·Hämostaseologie·Judith SondermannKarim Kentouche

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