PMID: 9179717May 1, 1997Paper

Health online and the empowered medical consumer

The Joint Commission Journal on Quality Improvement
T Ferguson

Abstract

Lay health care consumers' emergence as active participants in online health care networks is a powerful new technological pattern that promises to take the American health care system through all stages of cultural adaptation--substitution, innovation, and transformation. Soon everyone will recognize the fundamental changes online health has produced in the way we think and act about health care. A new subspecialty--consumer health informatics (CHI)--is covering two domains: (1) community CHI resources--the online networks, forums, databases, and World Wide Web sites that anyone with a home computer can access, and (2) clinical CHI resources--programs or systems developed by clinicians, system developers, or health maintenance organizations and provided to selected membership groups or patients. Sample communications among online self-helpers within their chat groups, e-mail exchanges, bulletin boards, and USENET newsgroups for chosen health topics show what is on their mind, how they get information, how they use it, and how they correct it. Sometimes, clinicians have observed, lay care offers higher quality than professional care. Lay self-helpers, such as the originator of the Brain Tumor Mailing List, have observed several...Continue Reading

Citations

Aug 27, 1999·Health Care Management Review·A S Wilkins
Jan 6, 2000·Medical Reference Services Quarterly·B W Collins, A B Sasser
Sep 20, 2002·Medical Reference Services Quarterly·Michele S Klein-Fedyshin
Feb 24, 2001·Health Affairs·D W Bates, A A Gawande
Sep 14, 2001·ANS. Advances in Nursing Science·S P LaCoursiere
Jan 1, 2003·Journal of Health Psychology·Robert WeisKate Kennedy
Feb 20, 2007·Cyberpsychology & Behavior : the Impact of the Internet, Multimedia and Virtual Reality on Behavior and Society·Neil S Coulson, Rebecca C Knibb
Feb 13, 2010·Integrative Cancer Therapies·Jeremy R Geffen

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