Health-related quality of life across pediatric chronic conditions.

The Journal of Pediatrics
Lisa M IngerskiKevin A Hommel

Abstract

To compare health-related quality of life (HRQOL) across 8 pediatric chronic conditions, including 5 understudied populations, and examine convergence between youth self-report and parent-proxy report. Secondary data from 589 patients and their caregivers were collected across the following conditions: obesity, eosinophilic gastrointestinal disorder, inflammatory bowel disease, epilepsy, type 1 diabetes, sickle cell disease, post-renal transplantation, and cystic fibrosis. Youth and caregivers completed age-appropriate self-report and/or parent-proxy report generic HRQOL measures. Youth diagnosed with eosinophilic gastrointestinal disorder and obesity had lower HRQOL than other pediatric conditions by parent report. Caregivers reported lower HRQOL by proxy report than youth self-reported across most subscales. Use of brief, easily administered, and reliable assessments of psychosocial functioning, such as HRQOL, may provide clinicians additional opportunities for intervention or services targeting improved HRQOL relative to the needs of each population.

References

Jul 4, 1998·Pediatrics·P W NewacheckP Arango
May 17, 2000·Current Opinion in Pulmonary Medicine·A L Quittner
Feb 24, 2001·Archives of Disease in Childhood·C Eiser, R Morse
Jan 5, 2002·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·C Eiser, R Morse
Apr 10, 2003·JAMA : the Journal of the American Medical Association·Jeffrey B SchwimmerJames W Varni
Oct 23, 2003·The Journal of Pediatrics·Subra KugathasanUNKNOWN Wisconsin Pediatric Inflammatory Bowel Disease Alliance
Nov 18, 2003·Ambulatory Pediatrics : the Official Journal of the Ambulatory Pediatric Association·James W VarniDouglas Skarr
Sep 13, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Lutz Goldbeck, Juliane Melches
Apr 8, 2006·Journal of Pediatric Psychology·Eric A StorchJanet H Silverstein
Apr 24, 2007·Archives of Disease in Childhood·M de WitF J Snoek
Nov 2, 2007·The Journal of Pediatrics·Edward L Schor
Nov 2, 2007·The Journal of Pediatrics·Paul H Wise
Feb 28, 2008·Journal of Developmental and Behavioral Pediatrics : JDBP·Wendy N GrayJanet H Silverstein
Mar 14, 2008·Journal of Pediatric Psychology·Kevin A HommelRobert N Baldassano
Apr 2, 2008·Obesity·Meg H ZellerChristina Ramey
Jun 4, 2008·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Penney UptonChristine Eiser
Jul 22, 2008·Journal of Pediatric Psychology·Avani C ModiMeg H Zeller
Jan 27, 2009·Medical Care·Silvina BerraUNKNOWN European KIDSCREEN group
May 28, 2009·Inflammatory Bowel Diseases·Christine A KarwowskiEva Szigethy

❮ Previous
Next ❯

Citations

Oct 5, 2011·Archives of Pediatrics & Adolescent Medicine·Maureen HackLaura Andreias
Apr 26, 2011·Journal of Pediatric Hematology/oncology·Courtney D ThornburgJulie A Panepinto
Jun 15, 2011·Epilepsia·Andreas BrunklausSameer M Zuberi
Oct 29, 2013·Journal of Pediatric Psychology·Sarah S JaserMargaret Grey
Jun 28, 2013·Cardiology in the Young·Simone J HearpsVicki A Anderson
Jan 11, 2014·Archives of Disease in Childhood·Rachel L KnowlesUNKNOWN UK Collaborative Study of Congenital Heart Defects (UKCSCHD)
Sep 23, 2011·International Journal of Speech-language Pathology·Rachel FeeneyJan M Nicholson
Jan 25, 2016·Burns : Journal of the International Society for Burn Injuries·Megan SimonsZephanie Tyack
Aug 11, 2015·Child: Care, Health and Development·M E McGradyA L H Pai
Aug 14, 2012·Pediatric Allergy and Immunology : Official Publication of the European Society of Pediatric Allergy and Immunology·Yelena P WuKevin A Hommel
Jun 21, 2013·Obesity·Meg H ZellerMegan B Ratcliff
Jun 16, 2011·Child: Care, Health and Development·J P FranciosiJ W Varni
Jan 16, 2013·Journal of Paediatrics and Child Health·Ru-Lan HsiehWen-Chung Lee
Mar 23, 2012·Pediatric Allergy and Immunology : Official Publication of the European Society of Pediatric Allergy and Immunology·Kevin A HommelMarc E Rothenberg
Mar 29, 2016·Journal of Pediatric Psychology·Kristin A LoiselleAvani C Modi
Apr 18, 2015·BMC Pediatrics·Sara D KhanguraUNKNOWN Canadian Inherited Metabolic Diseases Research Network
Mar 17, 2015·Pediatric Neurology·Anne M RentzJudith Prestifilippo
Sep 18, 2014·The Journal of Allergy and Clinical Immunology·Marc E RothenbergKulasiri A Gunawardena
Jan 4, 2015·The Journal of Pediatrics·Meg H ZellerUNKNOWN Teen Longitudinal Assessment of Bariatric Surgery (Teen-LABS) Consortium
Aug 7, 2013·The Journal of Pediatrics·Helena MoreiraMaria Cristina Canavarro
Sep 23, 2014·The Journal of Pediatrics·James W VarniUNKNOWN Pediatric Quality of Life Inventory (PedsQL) Gastrointestinal Symptoms Module Testing Study Consortium
Aug 26, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·James W VarniJohn F Pohl
Jul 28, 2016·Epilepsy & Behavior : E&B·Katherine W Follansbee-JungerAvani C Modi
Aug 4, 2016·PloS One·Rachel Louise KnowlesUNKNOWN UK Collaborative Study of Congenital Heart Defects (UKCSCHD)
Feb 23, 2017·Mucosal Immunology·L C Kottyan, M E Rothenberg
Jun 19, 2012·Annals of Saudi Medicine·Fadia AlBuhairanIbrahim Al Alwan
Mar 31, 2016·Journal of Pediatric Gastroenterology and Nutrition·Christopher C CushingJason S Frischer
Aug 27, 2013·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Christina PeterssonKarin Akesson
Oct 25, 2013·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Trudy HavermansIlse Van Diest
Apr 13, 2012·Journal of Child Neurology·Cleo ParkJohn F Kerrigan
Oct 20, 2017·Journal of Pediatric Psychology·Mary K LynchBurel R Goodin
Oct 31, 2017·Journal of Paediatrics and Child Health·Patrick JoyceHelen Heussler

❮ Previous
Next ❯

Related Concepts

Related Feeds

Anemia

Anemia develops when your blood lacks enough healthy red blood cells. Anemia of inflammation (AI, also called anemia of chronic disease) is a common, typically normocytic, normochromic anemia that is caused by an underlying inflammatory disease. Here is the latest research on anemia.

Blood And Marrow Transplantation

The use of hematopoietic stem cell transplantation or blood and marrow transplantation (bmt) is on the increase worldwide. BMT is used to replace damaged or destroyed bone marrow with healthy bone marrow stem cells. Here is the latest research on bone and marrow transplantation.

Related Papers

Seizure : the Journal of the British Epilepsy Association
Linda J StephenMartin J Brodie
The New England Journal of Medicine
M SillanpääShlomo Shinnar
© 2021 Meta ULC. All rights reserved