Jun 28, 2013

Health-related quality of life and congenital heart disease in Australia

Journal of Paediatrics and Child Health
Karen J EaglesonFrances M Boyle

Abstract

To determine whether, in children with congenital heart disease (CHD), disease severity is associated with health-related quality of life (HRQOL) and impact on the family. Cross-sectional, single-centre study comparing HRQOL outcomes of age and sex matched children with hypoplasia of the left ventricle (HLV) (n = 31) and tetralogy of Fallot (n = 29) was performed in Queensland, Australia. HRQOL was assessed using generic and disease-specific components of the Paediatric Quality of Life Inventory Measurement Model (PedsQL). Intra-diagnostic age group comparisons of HRQOL were examined. Impact of CHD on families and parental HRQOL was assessed using the PedsQL Family Impact Scale. Child and parent-proxy reporting indicate children with HLV have significantly lower overall HRQOL than children with tetralogy of Fallot across generic domains of HRQOL (P < 0.0001), with significantly lower scores in physical (P < 0.0001) and psychosocial (P < 0.0001) health domains. No significant difference in child reporting across domains of the Cardiac Module is evident. Parent-proxy reporting indicates significantly lower scores on the symptom scales for children with HLV (P < 0.001), with greater cognitive problems (P < 0.02) and perceived trea...Continue Reading

  • References37
  • Citations21

References

  • References37
  • Citations21

Mentioned in this Paper

Health Status
Left Ventricular Structure
Hypoplasia
Pediatric Quality of Life Inventory
Congenital Heart Disease
Pediatric Discipline
Congenital Heart Defects
Heart Diseases
Tetralogy of Fallot
Postoperative Complications

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