Health-related quality of life and orthosis use in a Swedish population with arthrogryposis

Prosthetics and Orthotics International
Marie ErikssonÅsa Bartonek

Abstract

Joint contractures are the main characteristics for children with arthrogryposis multiplex congenita. Orthoses are often used to enable or facilitate walking. To describe health-related quality of life in children with arthrogryposis multiplex congenita and satisfaction with orthoses in those using orthoses. Cross-sectional study. A total of 33 children with arthrogryposis multiplex congenita participated in the study. Questionnaires were used which measured health-related quality of life (Child Health Questionnaire-Parent Form and EQ-5D youth), mobility and self-care (Paediatric Evaluation of Disability Inventory) and satisfaction with orthoses (Quebec User Evaluation of Satisfaction with Assistive Technology 2.0). Children were divided into groups based on the use of orthoses: Ort-D were dependent on orthoses for walking, Ort-ND used orthoses but were not dependent on them for walking and Non-Ort did not use orthoses. Children with arthrogryposis multiplex congenita had significantly lower Child Health Questionnaire scores in 9 of 12 subscales compared to healthy controls. The children's reported perceived health with EQ-5D youth did not show any difference between children using orthoses or children using only shoes. Paediat...Continue Reading

References

Mar 28, 1996·The New England Journal of Medicine·M A Testa, D C Simonson
Apr 18, 2001·Developmental Medicine and Child Neurology·A Bartonek, H Saraste
May 10, 2003·Scandinavian Journal of Rheumatology·Ulla NorrbyAnders Fasth
Jul 13, 2006·American Journal of Medical Genetics. Part a·Anna-Karin KroksmarkMar Tulinius
Jun 23, 2007·Journal of Pediatric Orthopedics·Wesley P BevanKit Song
Oct 31, 2008·Child: Care, Health and Development·E BeckungA Colver
Apr 9, 2009·Journal of Pediatric Orthopedics·Erin R DillonKit Song
Apr 21, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Nora WilleUlrike Ravens-Sieberer
Feb 3, 2011·Journal of Children's Orthopaedics·Marie ErikssonAsa Bartonek
Jun 9, 2014·Journal of Children's Orthopaedics·Marie ErikssonAsa Bartonek

❮ Previous
Next ❯

Citations

Aug 23, 2018·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·S TraversoniA Giardini
Jun 15, 2019·Prosthetics and Orthotics International·Susan E SpauldingScott A Spaulding
Aug 10, 2019·American Journal of Medical Genetics. Part C, Seminars in Medical Genetics·Lisa V WagnerMaureen Donohoe
Sep 4, 2019·American Journal of Medical Genetics. Part C, Seminars in Medical Genetics·Reggie C HamdyMark Eidelman
Dec 16, 2020·Orthopaedics & Traumatology, Surgery & Research : OTSR·Jacques GriffetEmeline Bourgeois

❮ Previous
Next ❯

Software Mentioned

QUEST
ND
Ort
SPSS

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

The Journal of Bone and Joint Surgery. American Volume
N G MEADH J SWEENEY
El Día médico
I L GRINSZPANJ J REBOIRAS
Journal of Pediatric Orthopedics. Part B
F Grill
© 2022 Meta ULC. All rights reserved