Health-related quality of life, anxiety, depression and distress of mothers and fathers of children on Home parenteral nutrition

Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition
H A van OersMerit M Tabbers

Abstract

Parents of children with intestinal failure, dependent on Home Parenteral Nutrition (HPN), may experience psychosocial problems due to the illness and intensive treatment of their child. Literature concerning psychosocial problems is scarce. Therefore, we aimed to investigate Health-Related Quality of Life (HRQOL), levels of anxiety, depression, distress and everyday problems of these mothers and fathers. A multicenter study was conducted among 37 mothers and 25 fathers of 37 children on HPN (response-rate 37/49 = 76%, mean age children = 5.1 years, SD = 4.6). Parents completed three questionnaires to measure different outcomes on the KLIK website (www.hetklikt.nu): the TNO-AZL QOL Questionnaire (TAAQOL) to measure HRQOL, the Hospital Anxiety and Depression Scale (HADS) to measure anxiety and depression, and the Distress Thermometer for Parents (DT-P) to measure distress. Scores were compared to Dutch reference mothers and fathers using Mann-Whitney U-tests. No differences were found in HRQOL, measured by the TAAQOL, between HPN parents compared to the reference groups, except for the subscale 'depressive emotions' for mothers (p = .01) and 'daily activities' for fathers (p = .04). HPN mothers reported higher levels of depressi...Continue Reading

Citations

May 15, 2020·Journal of Pediatric Gastroenterology and Nutrition·Mary HalseyAkshay Batra
Oct 10, 2020·American Journal of Medical Genetics. Part a·Jessica Warnink-KavelaarsLeonie A Menke
Oct 30, 2020·Pflege·Nataša PrajoMartin Nagl-Cupal
Feb 9, 2021·Journal of Clinical Nursing·Helena SousaOscar Ribeiro
Jun 26, 2021·JPEN. Journal of Parenteral and Enteral Nutrition·Victoria C NeamPatrick J Javid
Oct 26, 2021·Journal of Pediatric Gastroenterology and Nutrition·Sjoerd C J NagelkerkeMerit M Tabbers

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