Health related quality of life in adolescents with abnormal bladder function: an assessment using the Child Health and Illness Profile-Adolescent Edition.

The Journal of Urology
Jennifer L DodsonJ P Gearhart

Abstract

We studied the impact of abnormal bladder function due to congenital urological disorders on health related quality of life in children. A reliable patient based method is needed to assess the impact of these conditions in children and the interventions used to treat them. Participants 11 to 17 years old with bladder exstrophy-epispadias complex, spina bifida or other causes of abnormal bladder function self-administered the Child Health and Illness Profile-Adolescent Edition, a generic health related quality of life instrument. They also responded to questions about incontinence, catheterization status and bother level. Mean scores on the profile were compared to population based norms. Mean age of the 50 participants was 14.9 years, 62% were male and 82% were white. Diagnoses included bladder exstrophy-epispadias complex in 37 patients, spina bifida in 10 and other in 3. The mean +/- SD score on the disorders domain of 14.2 +/- 6.3 was significantly worse than the population norm of 20. Mean scores on the satisfaction, discomfort, resilience, risks and achievement domains were comparable to or better than the population based norm of 20. A total of 29 participants reported incontinence and 31 performed catheterization. In thi...Continue Reading

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Citations

May 12, 2015·Expert Review of Pharmacoeconomics & Outcomes Research·Janne SchepersSteven Simoens
Mar 19, 2016·Developmental Medicine and Child Neurology·Kathryn SmithWilliam O Walker
Apr 27, 2010·Developmental Disabilities Research Reviews·Kathleen J Sawin, Melissa H Bellin
Mar 31, 2015·Journal of Pediatric Urology·Ruth A HurrellRaimondo M Cervellione
Jul 7, 2016·Child: Care, Health and Development·I BakanieneN Vaiciene-Magistris
Oct 19, 2016·Journal of Pediatric Urology·Massimo Di GraziaWaifro Rigamonti
Dec 17, 2020·Journal of Pediatric Rehabilitation Medicine·Kathleen J SawinAmy J Houtrow

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