Health-Related Quality of Life in End-Stage Renal Disease Patients: How Often Should We Ask and What Do We Do with the Answer?

Blood Purification
Shan Shan ChenMark Unruh

Abstract

End-stage renal disease (ESRD) patients have poor health-related quality of life (HRQOL) comparing to general population and comparable HRQOL to patients with other major chronic diseases. Poor HRQOL is associated with shorter survival. There is a limited threshold to which dialysis dose and parameters management can improve HRQOL in ESRD patients. Numerous studies have sought to find interventions to improve HRQOL. This article is to review the symptoms associated with poor HRQOL and how frequent the quality of life (QOL) should be evaluated to improve the outcome. It is required by the Center for Medicare and Medicaid Services to evaluate HRQOL of dialysis patients annually. KDIGO recommends the symptoms to be assessed regularly and the treatment is redirected toward a patient-centered care model. Studies have shown that measuring patient-reported outcomes frequently, from 4 times a day to every 3-6 months, without intervention did not improve the HRQOL significantly. Appropriate intervention of the symptoms may improve the quality of life (QOL). Studies in oncology have also showed a similar result. The commonly used tools to evaluate the HRQOL in dialysis patients take up to 30 min for completion. Therefore, frequent assess...Continue Reading

Citations

Dec 25, 2009·American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation·Shravanthi R GandraMona L Martin
Nov 18, 2018·Nephrology, Dialysis, Transplantation : Official Publication of the European Dialysis and Transplant Association - European Renal Association·Claudia TorinoCarmine Zoccali
May 2, 2020·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Tatiana Talya FleishmanPesach Shvartzman
Dec 16, 2020·Kidney Research and Clinical Practice·Jeonghwan LeeJung Pyo Lee
May 13, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Jieling ChenYaping He
Jun 11, 2021·The Patient·Kara Schick-MakaroffJoanne Greenhalgh
Jul 25, 2021·BMJ Supportive & Palliative Care·Samira RaoofiAhmad Ghashghaee
Oct 28, 2021·Journal of Renal Care·Stavroula VovlianouEvangelia Dounousi

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