Health-Related Quality of Life in Spanish Children With Coeliac Disease

Journal of Pediatric Gastroenterology and Nutrition
Josefa BarrioCristina Fernández

Abstract

The aim of the study was to assess health-related quality of life (HRQOL) using the Coeliac Disease Dutch Questionnaire (CDDUX) in Spanish children with coeliac disease. The CDDUX was cross-culturally adapted according to international consensus guidelines. HRQOL was assessed in coeliac members of the Madrid Coeliac Association ages 8 to 18 years using the adapted CDDUX. Cronbach α coefficient was determined as a measure of intraquestionnaire reliability and intraclass correlation coefficients as a measure of reliability between scores awarded by children and parents. Demographic and clinical variables associated with HRQOL were also assessed. A total of 1602 children of 3122 registered Madrid Coeliac Association members ages 8 to 18 years were invited to participate. The questionnaire was completed by 480 families (30%): 214 only by parents, 214 by parents and their children, and 52 only by children. Cronbach α coefficient for the total score for parents was 0.90, and for children 0.88 (0.75-0.90 by scales). Mean total (standard deviation [SD]) HRQOL scores in children and parents were 55.5 (SD 12.7) and 53.89 (SD 12.19), respectively, with no differences detected in paired comparisons between the 2 groups. Significantly worse...Continue Reading

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Citations

Aug 3, 2016·Journal of Pediatric Gastroenterology and Nutrition·Sabine L VriezingaM Luisa Mearin
Jun 3, 2017·Journal of Pediatric Gastroenterology and Nutrition·Sonya Meyer, Sara Rosenblum
Jun 20, 2018·Acta Paediatrica·Laura Kivelä, Kalle Kurppa
Feb 15, 2018·Gut·Jonas F LudvigssonDaniel A Leffler
Jun 1, 2019·Journal of Pediatric Gastroenterology and Nutrition·Shayna Skelley CoburnSamra Blanchard
Jan 4, 2020·Journal of Pediatric Gastroenterology and Nutrition·Zeinab NikniazLeila Nikniaz
Nov 2, 2019·Journal of Clinical Psychology in Medical Settings·Shayna CoburnIlana Kahn
Aug 31, 2019·Gastroenterology Research and Practice·Alina PoppKalle Kurppa
Apr 28, 2020·Revista Española De Enfermedades Digestivas : Organo Oficial De La Sociedad Española De Patología Digestiva·Francesc Casellas JordáMaría van der Hofstadt Rovira
Jul 28, 2020·Health and Quality of Life Outcomes·Josefa BarrioCristina Fernández
Jul 18, 2018·European Journal of Pediatrics·Josefa BarrioCristina Fernández
Dec 2, 2020·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Melike Taşdelen Baş, Hicran Çavuşoğlu
May 26, 2021·Nutrición hospitalaria·Maria Fernández MiajaCarlos Alfredo Bousoño García

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