Home as a place of caring and wellbeing? A qualitative study of informal carers and caring networks lived experiences of providing in-home end-of-life care

Health & Place
Debbie HorsfallKerrie Noonan

Abstract

Although the burden of caring is well described, the value of home as a potential place of wellbeing and support for informal caring networks when providing end-of-life care is not well recognised. Interviews and focus groups with 127 primary carers and members of informal care networks revealed their collaborative stories about caring for a dying person at home. Four themes emerged from the data: home as a place of comfort and belonging; places of social connection and collaborative caring; places of connection to nature and the non-human; places of achievement and triumph. When support is available, nurturing carer wellbeing may be best achieved at home.

Citations

Feb 15, 2018·BMJ Supportive & Palliative Care·Rosemary LeonardKerrie Noonan
Apr 25, 2018·Nursing Forum·Kristina TryseliusCarina Persson
Jun 27, 2019·The Australian Journal of Rural Health·Pauline MarshJonathan Mond
Sep 15, 2020·Palliative Care and Social Practice·Julian AbelHelen Kingston
Jun 13, 2020·BMJ Supportive & Palliative Care·Julian Abel, Mark Taubert
Dec 29, 2020·British Journal of Community Nursing·Alison WardJane Youell
Feb 13, 2021·International Journal of Environmental Research and Public Health·Jin Hee Yang, Gisoo Shin
May 21, 2020·The American Journal of Hospice & Palliative Care·Nathan ArchibaldMeena Kalluri
Jun 22, 2021·Death Studies·Rosemary LeonardAlison Rahn

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